Quality of Life Measurements in Spinal Cord Injury Patients

Enea Parimbelli, Gabriella Fizzotti, Caterina Pistarini, Carla Rognoni, Silvana Quaglini

Research output: Chapter in Book/Report/Conference proceedingConference contribution

Abstract

We recently developed UceWeb, an application for direct elicitation of utility coefficients (UCs), i.e. a measure of health states quality perceived by patients. UceWeb was used to interview a sample of patients affected by spinal cord injury (SCI). A standard questionnaire for measuring quality of life (QoL) and another one for the system evaluation were also administered to the same patients. The aims of this work are to (i) evaluate UceWeb usability; (ii) investigate relationships among QoL values elicited with different methods, (iii) create a reference set of UCs for the health states experienced by SCI patients. We show preliminary results obtained with the first 20 patients. Despite great variability found among QoL values elicited with the different methods, interesting correlations with patients' condition and profile have been found.

Original languageEnglish
Title of host publicationStudies in Health Technology and Informatics
PublisherIOS Press
Pages998
Number of pages1
Volume216
ISBN (Print)9781614995630
DOIs
Publication statusPublished - 2015
Event15th World Congress on Health and Biomedical Informatics, MEDINFO 2015 - Sao Paulo, Brazil
Duration: Aug 19 2015Aug 23 2015

Publication series

NameStudies in Health Technology and Informatics
Volume216
ISSN (Print)09269630
ISSN (Electronic)18798365

Other

Other15th World Congress on Health and Biomedical Informatics, MEDINFO 2015
CountryBrazil
CitySao Paulo
Period8/19/158/23/15

Keywords

  • Quality of life
  • Spinal Cord Injuries
  • Utility Theory

ASJC Scopus subject areas

  • Biomedical Engineering
  • Health Informatics
  • Health Information Management

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  • Cite this

    Parimbelli, E., Fizzotti, G., Pistarini, C., Rognoni, C., & Quaglini, S. (2015). Quality of Life Measurements in Spinal Cord Injury Patients. In Studies in Health Technology and Informatics (Vol. 216, pp. 998). (Studies in Health Technology and Informatics; Vol. 216). IOS Press. https://doi.org/10.3233/978-1-61499-564-7-998