Rare cancers are not so rare: The rare cancer burden in Europe

Gemma Gatta; Jan Maarten Van Der Zwan; Paolo G. Casali; Sabine Siesling; Angelo Paolo Dei Tos; Ian Kunkler; Renée Otter; Lisa Licitra; Sandra Mallone; Andrea Tavilla; Annalisa Trama; Riccardo Capocaccia

doi:10.1016/j.ejca.2011.08.008

Rare cancers are not so rare: The rare cancer burden in Europe

Gemma Gatta, Jan Maarten Van Der Zwan, Paolo G. Casali, Sabine Siesling, Angelo Paolo Dei Tos, Ian Kunkler, Renée Otter, Lisa Licitra, Sandra Mallone, Andrea Tavilla, Annalisa Trama, Riccardo Capocaccia

Fondazione IRCCS Istituto Nazionale dei Tumori

Research output: Contribution to journal › Article › peer-review

Abstract

Purpose: Epidemiologic information on rare cancers is scarce. The project Surveillance of Rare Cancers in Europe (RARECARE) provides estimates of the incidence, prevalence and survival of rare cancers in Europe based on a new and comprehensive list of these diseases. Materials and methods: RARECARE analysed population-based cancer registry (CR) data on European patients diagnosed from 1988 to 2002, with vital status information available up to 31st December 2003 (latest date for which most CRs had verified data). The mean population covered was about 162,000,000. Cancer incidence and survival rates for 1995-2002 and prevalence at 1st January 2003 were estimated. Results: Based on the RARECARE definition (incidence

Original language	English
Pages (from-to)	2493-2511
Number of pages	19
Journal	European Journal of Cancer
Volume	47
Issue number	17
DOIs	https://doi.org/10.1016/j.ejca.2011.08.008
Publication status	Published - Nov 2011

Keywords

Cancer registries
Incidence
Prevalence
Rare cancers
Survival

ASJC Scopus subject areas

Cancer Research
Oncology

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10.1016/j.ejca.2011.08.008

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title = "Rare cancers are not so rare: The rare cancer burden in Europe",

abstract = "Purpose: Epidemiologic information on rare cancers is scarce. The project Surveillance of Rare Cancers in Europe (RARECARE) provides estimates of the incidence, prevalence and survival of rare cancers in Europe based on a new and comprehensive list of these diseases. Materials and methods: RARECARE analysed population-based cancer registry (CR) data on European patients diagnosed from 1988 to 2002, with vital status information available up to 31st December 2003 (latest date for which most CRs had verified data). The mean population covered was about 162,000,000. Cancer incidence and survival rates for 1995-2002 and prevalence at 1st January 2003 were estimated. Results: Based on the RARECARE definition (incidence ",

keywords = "Cancer registries, Incidence, Prevalence, Rare cancers, Survival",

author = "Gemma Gatta and {Van Der Zwan}, {Jan Maarten} and Casali, {Paolo G.} and Sabine Siesling and {Dei Tos}, {Angelo Paolo} and Ian Kunkler and Ren{\'e}e Otter and Lisa Licitra and Sandra Mallone and Andrea Tavilla and Annalisa Trama and Riccardo Capocaccia",

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T2 - The rare cancer burden in Europe

AU - Gatta, Gemma

AU - Van Der Zwan, Jan Maarten

AU - Casali, Paolo G.

AU - Siesling, Sabine

AU - Dei Tos, Angelo Paolo

AU - Kunkler, Ian

AU - Otter, Renée

AU - Licitra, Lisa

AU - Mallone, Sandra

AU - Tavilla, Andrea

AU - Trama, Annalisa

AU - Capocaccia, Riccardo

PY - 2011/11

Y1 - 2011/11

N2 - Purpose: Epidemiologic information on rare cancers is scarce. The project Surveillance of Rare Cancers in Europe (RARECARE) provides estimates of the incidence, prevalence and survival of rare cancers in Europe based on a new and comprehensive list of these diseases. Materials and methods: RARECARE analysed population-based cancer registry (CR) data on European patients diagnosed from 1988 to 2002, with vital status information available up to 31st December 2003 (latest date for which most CRs had verified data). The mean population covered was about 162,000,000. Cancer incidence and survival rates for 1995-2002 and prevalence at 1st January 2003 were estimated. Results: Based on the RARECARE definition (incidence

AB - Purpose: Epidemiologic information on rare cancers is scarce. The project Surveillance of Rare Cancers in Europe (RARECARE) provides estimates of the incidence, prevalence and survival of rare cancers in Europe based on a new and comprehensive list of these diseases. Materials and methods: RARECARE analysed population-based cancer registry (CR) data on European patients diagnosed from 1988 to 2002, with vital status information available up to 31st December 2003 (latest date for which most CRs had verified data). The mean population covered was about 162,000,000. Cancer incidence and survival rates for 1995-2002 and prevalence at 1st January 2003 were estimated. Results: Based on the RARECARE definition (incidence

KW - Cancer registries

KW - Incidence

KW - Prevalence

KW - Rare cancers

KW - Survival

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Rare cancers are not so rare: The rare cancer burden in Europe

Abstract

Keywords

ASJC Scopus subject areas

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