Rare cancers are not so rare: The rare cancer burden in Europe

Gemma Gatta, Jan Maarten Van Der Zwan, Paolo G. Casali, Sabine Siesling, Angelo Paolo Dei Tos, Ian Kunkler, Renée Otter, Lisa Licitra, Sandra Mallone, Andrea Tavilla, Annalisa Trama, Riccardo Capocaccia

Research output: Contribution to journalArticlepeer-review


Purpose: Epidemiologic information on rare cancers is scarce. The project Surveillance of Rare Cancers in Europe (RARECARE) provides estimates of the incidence, prevalence and survival of rare cancers in Europe based on a new and comprehensive list of these diseases. Materials and methods: RARECARE analysed population-based cancer registry (CR) data on European patients diagnosed from 1988 to 2002, with vital status information available up to 31st December 2003 (latest date for which most CRs had verified data). The mean population covered was about 162,000,000. Cancer incidence and survival rates for 1995-2002 and prevalence at 1st January 2003 were estimated. Results: Based on the RARECARE definition (incidence

Original languageEnglish
Pages (from-to)2493-2511
Number of pages19
JournalEuropean Journal of Cancer
Issue number17
Publication statusPublished - Nov 2011


  • Cancer registries
  • Incidence
  • Prevalence
  • Rare cancers
  • Survival

ASJC Scopus subject areas

  • Cancer Research
  • Oncology


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