Rare cancers are not so rare: The rare cancer burden in Europe

Gemma Gatta; Jan Maarten Van Der Zwan; Paolo G. Casali; Sabine Siesling; Angelo Paolo Dei Tos; Ian Kunkler; Renée Otter; Lisa Licitra; Sandra Mallone; Andrea Tavilla; Annalisa Trama; Riccardo Capocaccia

doi:10.1016/j.ejca.2011.08.008

Rare cancers are not so rare: The rare cancer burden in Europe

Gemma Gatta, Jan Maarten Van Der Zwan, Paolo G. Casali, Sabine Siesling, Angelo Paolo Dei Tos, Ian Kunkler, Renée Otter, Lisa Licitra, Sandra Mallone, Andrea Tavilla, Annalisa Trama, Riccardo Capocaccia

Fondazione IRCCS Istituto Nazionale dei Tumori

Research output: Contribution to journal › Article › peer-review

Abstract

Purpose: Epidemiologic information on rare cancers is scarce. The project Surveillance of Rare Cancers in Europe (RARECARE) provides estimates of the incidence, prevalence and survival of rare cancers in Europe based on a new and comprehensive list of these diseases. Materials and methods: RARECARE analysed population-based cancer registry (CR) data on European patients diagnosed from 1988 to 2002, with vital status information available up to 31st December 2003 (latest date for which most CRs had verified data). The mean population covered was about 162,000,000. Cancer incidence and survival rates for 1995-2002 and prevalence at 1st January 2003 were estimated. Results: Based on the RARECARE definition (incidence

Original language	English
Pages (from-to)	2493-2511
Number of pages	19
Journal	European Journal of Cancer
Volume	47
Issue number	17
DOIs	https://doi.org/10.1016/j.ejca.2011.08.008
Publication status	Published - Nov 2011

Keywords

Cancer registries
Incidence
Prevalence
Rare cancers
Survival

ASJC Scopus subject areas

Cancer Research
Oncology

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10.1016/j.ejca.2011.08.008

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Rare cancers are not so rare : The rare cancer burden in Europe. / Gatta, Gemma; Van Der Zwan, Jan Maarten; Casali, Paolo G.; Siesling, Sabine; Dei Tos, Angelo Paolo; Kunkler, Ian; Otter, Renée; Licitra, Lisa; Mallone, Sandra; Tavilla, Andrea; Trama, Annalisa; Capocaccia, Riccardo.

In: European Journal of Cancer, Vol. 47, No. 17, 11.2011, p. 2493-2511.

Research output: Contribution to journal › Article › peer-review

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AU - Dei Tos, Angelo Paolo

AU - Kunkler, Ian

AU - Otter, Renée

AU - Licitra, Lisa

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Rare cancers are not so rare: The rare cancer burden in Europe

Abstract

Keywords

ASJC Scopus subject areas

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