TY - JOUR
T1 - Rare cancers are not so rare
T2 - The rare cancer burden in Europe
AU - Gatta, Gemma
AU - Van Der Zwan, Jan Maarten
AU - Casali, Paolo G.
AU - Siesling, Sabine
AU - Dei Tos, Angelo Paolo
AU - Kunkler, Ian
AU - Otter, Renée
AU - Licitra, Lisa
AU - Mallone, Sandra
AU - Tavilla, Andrea
AU - Trama, Annalisa
AU - Capocaccia, Riccardo
PY - 2011/11
Y1 - 2011/11
N2 - Purpose: Epidemiologic information on rare cancers is scarce. The project Surveillance of Rare Cancers in Europe (RARECARE) provides estimates of the incidence, prevalence and survival of rare cancers in Europe based on a new and comprehensive list of these diseases. Materials and methods: RARECARE analysed population-based cancer registry (CR) data on European patients diagnosed from 1988 to 2002, with vital status information available up to 31st December 2003 (latest date for which most CRs had verified data). The mean population covered was about 162,000,000. Cancer incidence and survival rates for 1995-2002 and prevalence at 1st January 2003 were estimated. Results: Based on the RARECARE definition (incidence
AB - Purpose: Epidemiologic information on rare cancers is scarce. The project Surveillance of Rare Cancers in Europe (RARECARE) provides estimates of the incidence, prevalence and survival of rare cancers in Europe based on a new and comprehensive list of these diseases. Materials and methods: RARECARE analysed population-based cancer registry (CR) data on European patients diagnosed from 1988 to 2002, with vital status information available up to 31st December 2003 (latest date for which most CRs had verified data). The mean population covered was about 162,000,000. Cancer incidence and survival rates for 1995-2002 and prevalence at 1st January 2003 were estimated. Results: Based on the RARECARE definition (incidence
KW - Cancer registries
KW - Incidence
KW - Prevalence
KW - Rare cancers
KW - Survival
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U2 - 10.1016/j.ejca.2011.08.008
DO - 10.1016/j.ejca.2011.08.008
M3 - Article
C2 - 22033323
AN - SCOPUS:80755140638
VL - 47
SP - 2493
EP - 2511
JO - European Journal of Cancer
JF - European Journal of Cancer
SN - 0959-8049
IS - 17
ER -