Abstract
The low incidence and the heterogeneity of very rare tumors (VRTs) demand for international cooperation. In 2008, EXPeRT (European Cooperative Study Group for Pediatric Rare Tumors) was founded by national groups from Italy, France, United Kingdom, Poland and Germany. The first aims of EXPeRT were to agree on a uniform definition of VRTs and to develop the currently most relevant scientific questions. Current initiatives include international data exchange, retrospective and prospective studies of specific entities, and the development of harmonized and internationally recognized guidelines. Moreover, EXPeRT established a network for expert consultation to assist in clinical decision in VRTs.
| Original language | English |
|---|---|
| Pages (from-to) | 416-420 |
| Number of pages | 5 |
| Journal | Klinische Padiatrie |
| Volume | 224 |
| Issue number | 6 |
| DOIs | |
| Publication status | Published - 2012 |
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Keywords
- children
- epidemiology
- network
- orphan disease
- rare tumors
ASJC Scopus subject areas
- Pediatrics, Perinatology, and Child Health
Cite this
Rare cancers in children - The EXPeRT initiative : A report from the european cooperative study group on pediatric rare tumors. / Bisogno, G.; Ferrari, A.; Bien, E.; Brecht, I. B.; Brennan, B.; Cecchetto, G.; Godzinski, J.; Orbach, D.; Reguerre, Y.; Stachowicz-Stencel, T.; Schneider, D. T.
In: Klinische Padiatrie, Vol. 224, No. 6, 2012, p. 416-420.Research output: Contribution to journal › Article
}
TY - JOUR
T1 - Rare cancers in children - The EXPeRT initiative
T2 - A report from the european cooperative study group on pediatric rare tumors
AU - Bisogno, G.
AU - Ferrari, A.
AU - Bien, E.
AU - Brecht, I. B.
AU - Brennan, B.
AU - Cecchetto, G.
AU - Godzinski, J.
AU - Orbach, D.
AU - Reguerre, Y.
AU - Stachowicz-Stencel, T.
AU - Schneider, D. T.
PY - 2012
Y1 - 2012
N2 - The low incidence and the heterogeneity of very rare tumors (VRTs) demand for international cooperation. In 2008, EXPeRT (European Cooperative Study Group for Pediatric Rare Tumors) was founded by national groups from Italy, France, United Kingdom, Poland and Germany. The first aims of EXPeRT were to agree on a uniform definition of VRTs and to develop the currently most relevant scientific questions. Current initiatives include international data exchange, retrospective and prospective studies of specific entities, and the development of harmonized and internationally recognized guidelines. Moreover, EXPeRT established a network for expert consultation to assist in clinical decision in VRTs.
AB - The low incidence and the heterogeneity of very rare tumors (VRTs) demand for international cooperation. In 2008, EXPeRT (European Cooperative Study Group for Pediatric Rare Tumors) was founded by national groups from Italy, France, United Kingdom, Poland and Germany. The first aims of EXPeRT were to agree on a uniform definition of VRTs and to develop the currently most relevant scientific questions. Current initiatives include international data exchange, retrospective and prospective studies of specific entities, and the development of harmonized and internationally recognized guidelines. Moreover, EXPeRT established a network for expert consultation to assist in clinical decision in VRTs.
KW - children
KW - epidemiology
KW - network
KW - orphan disease
KW - rare tumors
UR - http://www.scopus.com/inward/record.url?scp=84868473408&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=84868473408&partnerID=8YFLogxK
U2 - 10.1055/s-0032-1327608
DO - 10.1055/s-0032-1327608
M3 - Article
C2 - 23143769
AN - SCOPUS:84868473408
VL - 224
SP - 416
EP - 420
JO - Klinische Padiatrie
JF - Klinische Padiatrie
SN - 0300-8630
IS - 6
ER -