Rare cancers in children - The EXPeRT initiative: A report from the european cooperative study group on pediatric rare tumors

G. Bisogno, A. Ferrari, E. Bien, I. B. Brecht, B. Brennan, G. Cecchetto, J. Godzinski, D. Orbach, Y. Reguerre, T. Stachowicz-Stencel, D. T. Schneider

Research output: Contribution to journalArticlepeer-review

Abstract

The low incidence and the heterogeneity of very rare tumors (VRTs) demand for international cooperation. In 2008, EXPeRT (European Cooperative Study Group for Pediatric Rare Tumors) was founded by national groups from Italy, France, United Kingdom, Poland and Germany. The first aims of EXPeRT were to agree on a uniform definition of VRTs and to develop the currently most relevant scientific questions. Current initiatives include international data exchange, retrospective and prospective studies of specific entities, and the development of harmonized and internationally recognized guidelines. Moreover, EXPeRT established a network for expert consultation to assist in clinical decision in VRTs.

Original languageEnglish
Pages (from-to)416-420
Number of pages5
JournalKlinische Padiatrie
Volume224
Issue number6
DOIs
Publication statusPublished - 2012

Keywords

  • children
  • epidemiology
  • network
  • orphan disease
  • rare tumors

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health

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