Rare cancers in children - The EXPeRT initiative: A report from the european cooperative study group on pediatric rare tumors

G. Bisogno; A. Ferrari; E. Bien; I. B. Brecht; B. Brennan; G. Cecchetto; J. Godzinski; D. Orbach; Y. Reguerre; T. Stachowicz-Stencel; D. T. Schneider

doi:10.1055/s-0032-1327608

Rare cancers in children - The EXPeRT initiative: A report from the european cooperative study group on pediatric rare tumors

G. Bisogno, A. Ferrari, E. Bien, I. B. Brecht, B. Brennan, G. Cecchetto, J. Godzinski, D. Orbach, Y. Reguerre, T. Stachowicz-Stencel, D. T. Schneider

Fondazione IRCCS Istituto Nazionale dei Tumori

Research output: Contribution to journal › Article › peer-review

Abstract

The low incidence and the heterogeneity of very rare tumors (VRTs) demand for international cooperation. In 2008, EXPeRT (European Cooperative Study Group for Pediatric Rare Tumors) was founded by national groups from Italy, France, United Kingdom, Poland and Germany. The first aims of EXPeRT were to agree on a uniform definition of VRTs and to develop the currently most relevant scientific questions. Current initiatives include international data exchange, retrospective and prospective studies of specific entities, and the development of harmonized and internationally recognized guidelines. Moreover, EXPeRT established a network for expert consultation to assist in clinical decision in VRTs.

Original language	English
Pages (from-to)	416-420
Number of pages	5
Journal	Klinische Padiatrie
Volume	224
Issue number	6
DOIs	https://doi.org/10.1055/s-0032-1327608
Publication status	Published - 2012

Keywords

children
epidemiology
network
orphan disease
rare tumors

ASJC Scopus subject areas

Pediatrics, Perinatology, and Child Health

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10.1055/s-0032-1327608

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Bisogno, G., Ferrari, A., Bien, E., Brecht, I. B., Brennan, B., Cecchetto, G., Godzinski, J., Orbach, D., Reguerre, Y., Stachowicz-Stencel, T., & Schneider, D. T. (2012). Rare cancers in children - The EXPeRT initiative: A report from the european cooperative study group on pediatric rare tumors. Klinische Padiatrie, 224(6), 416-420. https://doi.org/10.1055/s-0032-1327608

Rare cancers in children - The EXPeRT initiative : A report from the european cooperative study group on pediatric rare tumors. / Bisogno, G.; Ferrari, A.; Bien, E.; Brecht, I. B.; Brennan, B.; Cecchetto, G.; Godzinski, J.; Orbach, D.; Reguerre, Y.; Stachowicz-Stencel, T.; Schneider, D. T.

In: Klinische Padiatrie, Vol. 224, No. 6, 2012, p. 416-420.

Research output: Contribution to journal › Article › peer-review

Bisogno, G, Ferrari, A, Bien, E, Brecht, IB, Brennan, B, Cecchetto, G, Godzinski, J, Orbach, D, Reguerre, Y, Stachowicz-Stencel, T & Schneider, DT 2012, 'Rare cancers in children - The EXPeRT initiative: A report from the european cooperative study group on pediatric rare tumors', Klinische Padiatrie, vol. 224, no. 6, pp. 416-420. https://doi.org/10.1055/s-0032-1327608

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