Abstract
The rare diseases are a group of diseases which diagnosis, treatement and prevention is a relevant problem all over the world. They are defined on the basis of their very low incidence also if this definition is not equal all over the world. The article offers a review of the national and regional legislation on rare diseases and it describes a survey carried out in Fondazione Ospedale Maggiore Policlinico IRCCS Mangiagalli Regina Elena, a research and teaching hospital, about the organization of the network of doctors who care for these patients.
| Original language | Italian |
|---|---|
| Pages (from-to) | 233-242 |
| Number of pages | 10 |
| Journal | Annali di igiene : medicina preventiva e di comunità |
| Volume | 20 |
| Issue number | 3 |
| Publication status | Published - May 2008 |
Fingerprint
ASJC Scopus subject areas
- Medicine(all)
Cite this
Malattie rare : il modello della Fondazione Ospedale Mag- giore Policlinico IRCCS Mangiagalli Regina Elena. / Fiorentino, S.; Lalatta, F.; Auxilia, F.; Castaldi, S.
In: Annali di igiene : medicina preventiva e di comunità, Vol. 20, No. 3, 05.2008, p. 233-242.Research output: Contribution to journal › Article
}
TY - JOUR
T1 - Malattie rare
T2 - il modello della Fondazione Ospedale Mag- giore Policlinico IRCCS Mangiagalli Regina Elena.
AU - Fiorentino, S.
AU - Lalatta, F.
AU - Auxilia, F.
AU - Castaldi, S.
PY - 2008/5
Y1 - 2008/5
N2 - The rare diseases are a group of diseases which diagnosis, treatement and prevention is a relevant problem all over the world. They are defined on the basis of their very low incidence also if this definition is not equal all over the world. The article offers a review of the national and regional legislation on rare diseases and it describes a survey carried out in Fondazione Ospedale Maggiore Policlinico IRCCS Mangiagalli Regina Elena, a research and teaching hospital, about the organization of the network of doctors who care for these patients.
AB - The rare diseases are a group of diseases which diagnosis, treatement and prevention is a relevant problem all over the world. They are defined on the basis of their very low incidence also if this definition is not equal all over the world. The article offers a review of the national and regional legislation on rare diseases and it describes a survey carried out in Fondazione Ospedale Maggiore Policlinico IRCCS Mangiagalli Regina Elena, a research and teaching hospital, about the organization of the network of doctors who care for these patients.
UR - http://www.scopus.com/inward/record.url?scp=79958251538&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=79958251538&partnerID=8YFLogxK
M3 - Articolo
C2 - 18693401
AN - SCOPUS:79958251538
VL - 20
SP - 233
EP - 242
JO - Annali di igiene : medicina preventiva e di comunita
JF - Annali di igiene : medicina preventiva e di comunita
SN - 1120-9135
IS - 3
ER -