Malattie rare

il modello della Fondazione Ospedale Mag- giore Policlinico IRCCS Mangiagalli Regina Elena.

Translated title of the contribution: [Rare diseases: the model of Ospedale Maggiore Policlinico IRCCS Mangiagalli Regina Elena].

S. Fiorentino, F. Lalatta, F. Auxilia, S. Castaldi

Research output: Contribution to journalArticle

Abstract

The rare diseases are a group of diseases which diagnosis, treatement and prevention is a relevant problem all over the world. They are defined on the basis of their very low incidence also if this definition is not equal all over the world. The article offers a review of the national and regional legislation on rare diseases and it describes a survey carried out in Fondazione Ospedale Maggiore Policlinico IRCCS Mangiagalli Regina Elena, a research and teaching hospital, about the organization of the network of doctors who care for these patients.

Original languageItalian
Pages (from-to)233-242
Number of pages10
JournalAnnali di igiene : medicina preventiva e di comunità
Volume20
Issue number3
Publication statusPublished - May 2008

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Rare Diseases
Legislation
Teaching Hospitals
Patient Care
Organizations
Incidence
Research
Surveys and Questionnaires

ASJC Scopus subject areas

  • Medicine(all)

Cite this

Malattie rare : il modello della Fondazione Ospedale Mag- giore Policlinico IRCCS Mangiagalli Regina Elena. / Fiorentino, S.; Lalatta, F.; Auxilia, F.; Castaldi, S.

In: Annali di igiene : medicina preventiva e di comunità, Vol. 20, No. 3, 05.2008, p. 233-242.

Research output: Contribution to journalArticle

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