Supporting self-managed leisure engagement and communication in post-coma persons with multiple disabilities

Giulio E. Lancioni, Nirbhay N. Singh, Mark F. O'Reilly, Jeff Sigafoos, Marta Olivetti Belardinelli, Francesca Buonocunto, Fiora D'Amico, Jorge Navarro, Crocifissa Lanzilotti, Floriana Denitto, Marina De Tommaso, Marisa Megna

Research output: Contribution to journalArticle

Abstract

Post-coma persons affected by extensive motor impairment and lack of speech, with or without disorders of consciousness, need special support to manage leisure engagement and communication. These two studies extended research efforts aimed at assessing basic technology-aided programs to provide such support. Specifically, Study I assessed a program for promoting independent stimulation choice in four post-coma persons who combined motor and speech disabilities with disorders of consciousness (i.e., were rated between the minimally conscious state and the emergence from such state). Study II assessed a program for promoting independent television operation and basic communication in three post-coma participants who, contrary to those involved in Study I, did not have disorders of consciousness (i.e., had emerged from a minimally conscious state). The results of the studies were largely positive with substantial levels of independent stimulation choice and access for the participants of Study I and independent television operation and communication for the participants of Study II. The results were analyzed in relation to previous data in the area and in terms of their implications for daily contexts dealing with these persons.

Original languageEnglish
Pages (from-to)75-83
Number of pages9
JournalResearch in Developmental Disabilities
Volume38
DOIs
Publication statusPublished - Mar 1 2015

Keywords

  • Communication
  • Emergence from MCS
  • Leisure engagement
  • Minimally conscious state (MCS)
  • Technology-aided programs

ASJC Scopus subject areas

  • Clinical Psychology
  • Developmental and Educational Psychology
  • Medicine(all)

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    Lancioni, G. E., Singh, N. N., O'Reilly, M. F., Sigafoos, J., Belardinelli, M. O., Buonocunto, F., D'Amico, F., Navarro, J., Lanzilotti, C., Denitto, F., De Tommaso, M., & Megna, M. (2015). Supporting self-managed leisure engagement and communication in post-coma persons with multiple disabilities. Research in Developmental Disabilities, 38, 75-83. https://doi.org/10.1016/j.ridd.2014.12.015