The Arabic version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)

Paediatric Rheumatology International Trials Organization (PRINTO)

Research output: Contribution to journalArticle

Abstract

The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Arabic language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic and clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the 3 Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability, and construct validity (convergent and discriminant validity). A total of 100 JIA patients (27.0% systemic JIA, 23.0% oligoarticular, 25.0% RF negative polyarthritis, and 25.0% other categories) and 100 healthy children, were enrolled in one paediatric rheumatology centre. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed satisfactory psychometric performances. In conclusion, the Arabic version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and in clinical research.

Original languageEnglish
Pages (from-to)43-49
Number of pages7
JournalRheumatology International
Volume38
Issue numberSuppl 1
DOIs
Publication statusPublished - Apr 2018

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Juvenile Arthritis
Psychometrics
Reproducibility of Results
Parents
Rheumatology
Arthritis

Keywords

  • Adolescent
  • Age of Onset
  • Arthritis, Juvenile/diagnosis
  • Case-Control Studies
  • Child
  • Child, Preschool
  • Cultural Characteristics
  • Disability Evaluation
  • Female
  • Health Status
  • Humans
  • Male
  • Parents/psychology
  • Patient Reported Outcome Measures
  • Patients/psychology
  • Predictive Value of Tests
  • Prognosis
  • Psychometrics
  • Quality of Life
  • Reproducibility of Results
  • Rheumatology/methods
  • Saudi Arabia
  • Translating

Cite this

The Arabic version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR). / Paediatric Rheumatology International Trials Organization (PRINTO).

In: Rheumatology International, Vol. 38, No. Suppl 1, 04.2018, p. 43-49.

Research output: Contribution to journalArticle

Paediatric Rheumatology International Trials Organization (PRINTO) 2018, 'The Arabic version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)', Rheumatology International, vol. 38, no. Suppl 1, pp. 43-49. https://doi.org/10.1007/s00296-018-3979-3
Paediatric Rheumatology International Trials Organization (PRINTO). / The Arabic version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR). In: Rheumatology International. 2018 ; Vol. 38, No. Suppl 1. pp. 43-49.
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abstract = "The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Arabic language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic and clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the 3 Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability, and construct validity (convergent and discriminant validity). A total of 100 JIA patients (27.0{\%} systemic JIA, 23.0{\%} oligoarticular, 25.0{\%} RF negative polyarthritis, and 25.0{\%} other categories) and 100 healthy children, were enrolled in one paediatric rheumatology centre. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed satisfactory psychometric performances. In conclusion, the Arabic version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and in clinical research.",
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AU - AlE'ed, Ashwaq

AU - Muzaffer, Mohammed

AU - Consolaro, Alessandro

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AU - Ruperto, Nicolino

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AB - The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Arabic language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic and clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the 3 Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability, and construct validity (convergent and discriminant validity). A total of 100 JIA patients (27.0% systemic JIA, 23.0% oligoarticular, 25.0% RF negative polyarthritis, and 25.0% other categories) and 100 healthy children, were enrolled in one paediatric rheumatology centre. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed satisfactory psychometric performances. In conclusion, the Arabic version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and in clinical research.

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KW - Case-Control Studies

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KW - Child, Preschool

KW - Cultural Characteristics

KW - Disability Evaluation

KW - Female

KW - Health Status

KW - Humans

KW - Male

KW - Parents/psychology

KW - Patient Reported Outcome Measures

KW - Patients/psychology

KW - Predictive Value of Tests

KW - Prognosis

KW - Psychometrics

KW - Quality of Life

KW - Reproducibility of Results

KW - Rheumatology/methods

KW - Saudi Arabia

KW - Translating

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JO - Rheumatology International

JF - Rheumatology International

SN - 0172-8172

IS - Suppl 1

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