The care for adults with congenital heart disease: Organization and function of a grown-up congenital heart disease unit

Research output: Contribution to journalArticle

Abstract

Thanks to the improvement of surgical and interventional cardiac procedures, the majority of children with congenital heart defects (CHD) can now be expected to reach adulthood. The number of adults with congenital heart disease (ACHD) will inevitably increase, and recent data affirm that in Europe, we are actually faced with an estimated patient population of 2.3 million. These patients, particularly the adults with moderate and highly complex CHD, can be very difficult to manage, and should be treated in few experienced and specialized 'grown-up congenital heart disease' (GUCH) units, concentrating resources, patients, funding, and professional experiences. On 2000, we created a GUCH unit in our hospital that rapidly became a referral centre in Italy for number and complexity of patients treated. The present study is a presentation of how is organized our GUCH unit and a brief overview of our more recent experience with ACHD patients.

Original languageEnglish
Pages (from-to)E15-E18
JournalEuropean Heart Journal, Supplement
Volume18
DOIs
Publication statusPublished - Apr 28 2016

Keywords

  • Adult with congenital heart disease
  • Cardiac surgery
  • Congenital heart disease
  • Interventional cardiology

ASJC Scopus subject areas

  • Cardiology and Cardiovascular Medicine

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