The Danish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)

Paediatric Rheumatology International Trials Organisation (PRINTO)

Research output: Contribution to journalArticle

Abstract

The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Danish language. The reading comprehension of the questionnaire was tested in ten JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability and construct validity (convergent and discriminant validity). A total of 303 JIA patients (7.9% systemic, 35% oligoarticular, 22.1% RF negative polyarthritis, 35% other categories) and 99 healthy children, were enrolled in three centres. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Danish version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.

Original languageEnglish
Pages (from-to)131-138
Number of pages8
JournalRheumatology International
Volume38
Issue numberSuppl 1
DOIs
Publication statusPublished - Apr 2018

Fingerprint

Juvenile Arthritis
Psychometrics
Reproducibility of Results
Parents
Arthritis
Reading
Healthy Volunteers

Keywords

  • Adolescent
  • Age of Onset
  • Arthritis, Juvenile/diagnosis
  • Case-Control Studies
  • Child
  • Child, Preschool
  • Cultural Characteristics
  • Denmark
  • Disability Evaluation
  • Female
  • Health Status
  • Humans
  • Male
  • Parents/psychology
  • Patient Reported Outcome Measures
  • Patients/psychology
  • Predictive Value of Tests
  • Prognosis
  • Psychometrics
  • Quality of Life
  • Reproducibility of Results
  • Rheumatology/methods
  • Translating

Cite this

The Danish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR). / Paediatric Rheumatology International Trials Organisation (PRINTO).

In: Rheumatology International, Vol. 38, No. Suppl 1, 04.2018, p. 131-138.

Research output: Contribution to journalArticle

Paediatric Rheumatology International Trials Organisation (PRINTO) 2018, 'The Danish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)', Rheumatology International, vol. 38, no. Suppl 1, pp. 131-138. https://doi.org/10.1007/s00296-018-3946-z
Paediatric Rheumatology International Trials Organisation (PRINTO). / The Danish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR). In: Rheumatology International. 2018 ; Vol. 38, No. Suppl 1. pp. 131-138.
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abstract = "The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Danish language. The reading comprehension of the questionnaire was tested in ten JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability and construct validity (convergent and discriminant validity). A total of 303 JIA patients (7.9{\%} systemic, 35{\%} oligoarticular, 22.1{\%} RF negative polyarthritis, 35{\%} other categories) and 99 healthy children, were enrolled in three centres. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Danish version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.",
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AU - Zak, Marek

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AB - The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Danish language. The reading comprehension of the questionnaire was tested in ten JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability and construct validity (convergent and discriminant validity). A total of 303 JIA patients (7.9% systemic, 35% oligoarticular, 22.1% RF negative polyarthritis, 35% other categories) and 99 healthy children, were enrolled in three centres. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Danish version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.

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KW - Cultural Characteristics

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KW - Disability Evaluation

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KW - Health Status

KW - Humans

KW - Male

KW - Parents/psychology

KW - Patient Reported Outcome Measures

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KW - Predictive Value of Tests

KW - Prognosis

KW - Psychometrics

KW - Quality of Life

KW - Reproducibility of Results

KW - Rheumatology/methods

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JO - Rheumatology International

JF - Rheumatology International

SN - 0172-8172

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