The EORTC module for quality of life in patients with thyroid cancer: phase III

Susanne Singer, Susan Jordan, Laura D Locati, Monica Pinto, Iwona M Tomaszewska, Cláudia Araújo, Eva Hammerlid, E Vidhubala, Olga Husson, Naomi Kiyota, Christine Brannan, Dina Salem, Eva M Gamper, Juan Ignacio Arraras, Georgios Ioannidis, Guy Andry, Johanna Inhestern, Vincent Grégoire, Lisa Licitra, EORTC Quality of Life Group, the EORTC Head and Neck Cancer Group, and the EORTC Endocrine Task Force

Research output: Contribution to journalArticle

Abstract

The purpose of the study was to pilot-test a questionnaire measuring health-related quality of life (QoL) in thyroid cancer patients to be used with the European Organisation for Research and Treatment of Cancer (EORTC) core questionnaire EORTC QLQ-C30. A provisional questionnaire with 47 items was administered to patients treated for thyroid cancer within the last 2 years. Patients were interviewed about time and help needed to complete the questionnaire, and whether they found the items understandable, confusing or annoying. Items were kept in the questionnaire if they fulfilled pre-defined criteria: relevant to the patients, easy to understand, not confusing, few missing values, neither floor nor ceiling effects, and high variance. A total of 182 thyroid cancer patients in 15 countries participated (n = 115 with papillary, n = 31 with follicular, n = 22 with medullary, n = 6 with anaplastic, and n = 8 with other types of thyroid cancer). Sixty-six percent of the patients needed 15 min or less to complete the questionnaire. Of the 47 items, 31 fulfilled the predefined criteria and were kept unchanged, 14 were removed, and 2 were changed. Shoulder dysfunction was mentioned by 5 patients as missing and an item covering this issue was added. To conclude, the EORTC quality of life module for thyroid cancer (EORTC QLQ-THY34) is ready for the final validation phase IV.

Original languageEnglish
Pages (from-to)197-207
Number of pages11
JournalEndocrine-Related Cancer
Volume24
Issue number4
DOIs
Publication statusPublished - Apr 2017

Keywords

  • Journal Article

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    Singer, S., Jordan, S., Locati, L. D., Pinto, M., Tomaszewska, I. M., Araújo, C., Hammerlid, E., Vidhubala, E., Husson, O., Kiyota, N., Brannan, C., Salem, D., Gamper, E. M., Arraras, J. I., Ioannidis, G., Andry, G., Inhestern, J., Grégoire, V., Licitra, L., & EORTC Quality of Life Group, the EORTC Head and Neck Cancer Group, and the EORTC Endocrine Task Force (2017). The EORTC module for quality of life in patients with thyroid cancer: phase III. Endocrine-Related Cancer, 24(4), 197-207. https://doi.org/10.1530/ERC-16-0530