The Eurolight project: The impact of primary headache disorders in Europe. Description of methods

C. Andrée, L. J. Stovner, T. J. Steiner, J. Barré, Z. Katsarava, J. M. Lainez, M. Lanteri-Minet, G. Mick, D. Rastenyte, E. Ruiz De La Torre, C. Tassorelli, P. Vriezen, C. Lampl

Research output: Contribution to journalArticlepeer-review

Abstract

The Eurolight project is the first at European Union level to assess the impact of headache disorders, and also the first of its scale performed by collaboration between professional and lay organizations and individuals. Here are reported the methods developed for it. The project took the form of surveys, by structured questionnaire, conducted in ten countries of Europe which together represented 60% of the adult population of the European Union. In Lithuania, the survey was population-based. Elsewhere, truly population-based studies were impractical for reasons of cost, and various compromises were developed. Closest to being population-based were the surveys in Germany, Luxembourg, the Netherlands, Italy and Spain. In Austria, France and UK, samples were taken from health-care settings. In addition in the Netherlands, Spain and Ireland, samples were drawn from members of national headache patient organizations and their relatives. Independent double data-entry was performed prior to analysis. Returned questionnaires from 9,269 respondents showed a moderate female bias (58%); of respondents from patients' organizations (n = 992), 61% were female. Mean age of all respondents was 44 years; samples from patients' organizations were slightly older (mean 47 years). The different sampling methods worked with differing degrees of effectiveness, as evidenced by the responder-rates, which varied from 10.8 to 90.7%. In the more population-based surveys, responder-rates varied from 11.3 to 58.8%. We conclude that the methodology, although with differences born of necessity in the ten countries, was sound overall, and will provide robust data on the public ill-health that results from headache in Europe.

Original languageEnglish
Pages (from-to)541-549
Number of pages9
JournalJournal of Headache and Pain
Volume12
Issue number5
DOIs
Publication statusPublished - Oct 2011

Keywords

  • Burden
  • Eurolight
  • Impact
  • Methodology
  • Primary headache

ASJC Scopus subject areas

  • Anesthesiology and Pain Medicine
  • Clinical Neurology

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