The Eurolight project: The impact of primary headache disorders in Europe. Description of methods

C. Andrée, L. J. Stovner, T. J. Steiner, J. Barré, Z. Katsarava, J. M. Lainez, M. Lanteri-Minet, G. Mick, D. Rastenyte, E. Ruiz De La Torre, C. Tassorelli, P. Vriezen, C. Lampl

Research output: Contribution to journalArticle

22 Citations (Scopus)

Abstract

The Eurolight project is the first at European Union level to assess the impact of headache disorders, and also the first of its scale performed by collaboration between professional and lay organizations and individuals. Here are reported the methods developed for it. The project took the form of surveys, by structured questionnaire, conducted in ten countries of Europe which together represented 60% of the adult population of the European Union. In Lithuania, the survey was population-based. Elsewhere, truly population-based studies were impractical for reasons of cost, and various compromises were developed. Closest to being population-based were the surveys in Germany, Luxembourg, the Netherlands, Italy and Spain. In Austria, France and UK, samples were taken from health-care settings. In addition in the Netherlands, Spain and Ireland, samples were drawn from members of national headache patient organizations and their relatives. Independent double data-entry was performed prior to analysis. Returned questionnaires from 9,269 respondents showed a moderate female bias (58%); of respondents from patients' organizations (n = 992), 61% were female. Mean age of all respondents was 44 years; samples from patients' organizations were slightly older (mean 47 years). The different sampling methods worked with differing degrees of effectiveness, as evidenced by the responder-rates, which varied from 10.8 to 90.7%. In the more population-based surveys, responder-rates varied from 11.3 to 58.8%. We conclude that the methodology, although with differences born of necessity in the ten countries, was sound overall, and will provide robust data on the public ill-health that results from headache in Europe.

Original languageEnglish
Pages (from-to)541-549
Number of pages9
JournalJournal of Headache and Pain
Volume12
Issue number5
DOIs
Publication statusPublished - Oct 2011

Fingerprint

Primary Headache Disorders
Population
Organizations
European Union
Netherlands
Spain
Headache
Luxembourg
Lithuania
Headache Disorders
Surveys and Questionnaires
Austria
Ireland
Italy
France
Germany
Public Health
Delivery of Health Care
Costs and Cost Analysis

Keywords

  • Burden
  • Eurolight
  • Impact
  • Methodology
  • Primary headache

ASJC Scopus subject areas

  • Anesthesiology and Pain Medicine
  • Clinical Neurology

Cite this

Andrée, C., Stovner, L. J., Steiner, T. J., Barré, J., Katsarava, Z., Lainez, J. M., ... Lampl, C. (2011). The Eurolight project: The impact of primary headache disorders in Europe. Description of methods. Journal of Headache and Pain, 12(5), 541-549. https://doi.org/10.1007/s10194-011-0356-y

The Eurolight project : The impact of primary headache disorders in Europe. Description of methods. / Andrée, C.; Stovner, L. J.; Steiner, T. J.; Barré, J.; Katsarava, Z.; Lainez, J. M.; Lanteri-Minet, M.; Mick, G.; Rastenyte, D.; De La Torre, E. Ruiz; Tassorelli, C.; Vriezen, P.; Lampl, C.

In: Journal of Headache and Pain, Vol. 12, No. 5, 10.2011, p. 541-549.

Research output: Contribution to journalArticle

Andrée, C, Stovner, LJ, Steiner, TJ, Barré, J, Katsarava, Z, Lainez, JM, Lanteri-Minet, M, Mick, G, Rastenyte, D, De La Torre, ER, Tassorelli, C, Vriezen, P & Lampl, C 2011, 'The Eurolight project: The impact of primary headache disorders in Europe. Description of methods', Journal of Headache and Pain, vol. 12, no. 5, pp. 541-549. https://doi.org/10.1007/s10194-011-0356-y
Andrée, C. ; Stovner, L. J. ; Steiner, T. J. ; Barré, J. ; Katsarava, Z. ; Lainez, J. M. ; Lanteri-Minet, M. ; Mick, G. ; Rastenyte, D. ; De La Torre, E. Ruiz ; Tassorelli, C. ; Vriezen, P. ; Lampl, C. / The Eurolight project : The impact of primary headache disorders in Europe. Description of methods. In: Journal of Headache and Pain. 2011 ; Vol. 12, No. 5. pp. 541-549.
@article{6ba7ceac3075488893331f3367512309,
title = "The Eurolight project: The impact of primary headache disorders in Europe. Description of methods",
abstract = "The Eurolight project is the first at European Union level to assess the impact of headache disorders, and also the first of its scale performed by collaboration between professional and lay organizations and individuals. Here are reported the methods developed for it. The project took the form of surveys, by structured questionnaire, conducted in ten countries of Europe which together represented 60{\%} of the adult population of the European Union. In Lithuania, the survey was population-based. Elsewhere, truly population-based studies were impractical for reasons of cost, and various compromises were developed. Closest to being population-based were the surveys in Germany, Luxembourg, the Netherlands, Italy and Spain. In Austria, France and UK, samples were taken from health-care settings. In addition in the Netherlands, Spain and Ireland, samples were drawn from members of national headache patient organizations and their relatives. Independent double data-entry was performed prior to analysis. Returned questionnaires from 9,269 respondents showed a moderate female bias (58{\%}); of respondents from patients' organizations (n = 992), 61{\%} were female. Mean age of all respondents was 44 years; samples from patients' organizations were slightly older (mean 47 years). The different sampling methods worked with differing degrees of effectiveness, as evidenced by the responder-rates, which varied from 10.8 to 90.7{\%}. In the more population-based surveys, responder-rates varied from 11.3 to 58.8{\%}. We conclude that the methodology, although with differences born of necessity in the ten countries, was sound overall, and will provide robust data on the public ill-health that results from headache in Europe.",
keywords = "Burden, Eurolight, Impact, Methodology, Primary headache",
author = "C. Andr{\'e}e and Stovner, {L. J.} and Steiner, {T. J.} and J. Barr{\'e} and Z. Katsarava and Lainez, {J. M.} and M. Lanteri-Minet and G. Mick and D. Rastenyte and {De La Torre}, {E. Ruiz} and C. Tassorelli and P. Vriezen and C. Lampl",
year = "2011",
month = "10",
doi = "10.1007/s10194-011-0356-y",
language = "English",
volume = "12",
pages = "541--549",
journal = "Journal of Headache and Pain",
issn = "1129-2369",
publisher = "BioMed Central Ltd.",
number = "5",

}

TY - JOUR

T1 - The Eurolight project

T2 - The impact of primary headache disorders in Europe. Description of methods

AU - Andrée, C.

AU - Stovner, L. J.

AU - Steiner, T. J.

AU - Barré, J.

AU - Katsarava, Z.

AU - Lainez, J. M.

AU - Lanteri-Minet, M.

AU - Mick, G.

AU - Rastenyte, D.

AU - De La Torre, E. Ruiz

AU - Tassorelli, C.

AU - Vriezen, P.

AU - Lampl, C.

PY - 2011/10

Y1 - 2011/10

N2 - The Eurolight project is the first at European Union level to assess the impact of headache disorders, and also the first of its scale performed by collaboration between professional and lay organizations and individuals. Here are reported the methods developed for it. The project took the form of surveys, by structured questionnaire, conducted in ten countries of Europe which together represented 60% of the adult population of the European Union. In Lithuania, the survey was population-based. Elsewhere, truly population-based studies were impractical for reasons of cost, and various compromises were developed. Closest to being population-based were the surveys in Germany, Luxembourg, the Netherlands, Italy and Spain. In Austria, France and UK, samples were taken from health-care settings. In addition in the Netherlands, Spain and Ireland, samples were drawn from members of national headache patient organizations and their relatives. Independent double data-entry was performed prior to analysis. Returned questionnaires from 9,269 respondents showed a moderate female bias (58%); of respondents from patients' organizations (n = 992), 61% were female. Mean age of all respondents was 44 years; samples from patients' organizations were slightly older (mean 47 years). The different sampling methods worked with differing degrees of effectiveness, as evidenced by the responder-rates, which varied from 10.8 to 90.7%. In the more population-based surveys, responder-rates varied from 11.3 to 58.8%. We conclude that the methodology, although with differences born of necessity in the ten countries, was sound overall, and will provide robust data on the public ill-health that results from headache in Europe.

AB - The Eurolight project is the first at European Union level to assess the impact of headache disorders, and also the first of its scale performed by collaboration between professional and lay organizations and individuals. Here are reported the methods developed for it. The project took the form of surveys, by structured questionnaire, conducted in ten countries of Europe which together represented 60% of the adult population of the European Union. In Lithuania, the survey was population-based. Elsewhere, truly population-based studies were impractical for reasons of cost, and various compromises were developed. Closest to being population-based were the surveys in Germany, Luxembourg, the Netherlands, Italy and Spain. In Austria, France and UK, samples were taken from health-care settings. In addition in the Netherlands, Spain and Ireland, samples were drawn from members of national headache patient organizations and their relatives. Independent double data-entry was performed prior to analysis. Returned questionnaires from 9,269 respondents showed a moderate female bias (58%); of respondents from patients' organizations (n = 992), 61% were female. Mean age of all respondents was 44 years; samples from patients' organizations were slightly older (mean 47 years). The different sampling methods worked with differing degrees of effectiveness, as evidenced by the responder-rates, which varied from 10.8 to 90.7%. In the more population-based surveys, responder-rates varied from 11.3 to 58.8%. We conclude that the methodology, although with differences born of necessity in the ten countries, was sound overall, and will provide robust data on the public ill-health that results from headache in Europe.

KW - Burden

KW - Eurolight

KW - Impact

KW - Methodology

KW - Primary headache

UR - http://www.scopus.com/inward/record.url?scp=80054044485&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=80054044485&partnerID=8YFLogxK

U2 - 10.1007/s10194-011-0356-y

DO - 10.1007/s10194-011-0356-y

M3 - Article

C2 - 21660430

AN - SCOPUS:80054044485

VL - 12

SP - 541

EP - 549

JO - Journal of Headache and Pain

JF - Journal of Headache and Pain

SN - 1129-2369

IS - 5

ER -