TY - JOUR
T1 - The impact of COVID-19 on rare and complex connective tissue diseases
T2 - the experience of ERN ReCONNET
AU - Talarico, Rosaria
AU - Aguilera, Silvia
AU - Alexander, Tobias
AU - Amoura, Zahir
AU - Antunes, Ana M.
AU - Arnaud, Laurent
AU - Avcin, Tadej
AU - Beretta, Lorenzo
AU - Bombardieri, Stefano
AU - Burmester, Gerd R.
AU - Cannizzo, Sara
AU - Cavagna, Lorenzo
AU - Chaigne, Benjamin
AU - Cornet, Alain
AU - Costedoat-Chalumeau, Nathalie
AU - Doria, Andrea
AU - Ferraris, Alessandro
AU - Fischer-Betz, Rebecca
AU - Fonseca, João E.
AU - Frank, Charissa
AU - Gaglioti, Andrea
AU - Galetti, Ilaria
AU - Grunert, Jürgen
AU - Guimarães, Vera
AU - Hachulla, Eric
AU - Houssiau, Frederic
AU - Iaccarino, Luca
AU - Krieg, Thomas
AU - Limper, Marteen
AU - Malfait, Fransiska
AU - Mariette, Xavier
AU - Marinello, Diana
AU - Martin, Thierry
AU - Matthews, Lisa
AU - Matucci-Cerinic, Marco
AU - Meyer, Alain
AU - Montecucco, Carlomaurizio
AU - Mouthon, Luc
AU - Müller-Ladner, Ulf
AU - Rednic, Simona
AU - Romão, Vasco C.
AU - Schneider, Matthias
AU - Smith, Vanessa
AU - Sulli, Alberto
AU - Tamirou, Farah
AU - Taruscio, Domenica
AU - Taulaigo, Anna V.
AU - Terol, Enrique
AU - Tincani, Angela
AU - Cutolo, Maurizio
N1 - Funding Information:
This publication was funded by the European Union’s Health Programme (2014–2020).
Publisher Copyright:
© 2021, Springer Nature Limited.
Copyright:
Copyright 2021 Elsevier B.V., All rights reserved.
PY - 2021
Y1 - 2021
N2 - During the COVID-19 pandemic, the need to provide high-level care for a large number of patients with COVID-19 has affected resourcing for, and limited the routine care of, all other conditions. The impact of this health emergency is particularly relevant in the rare connective tissue diseases (rCTDs) communities, as discussed in this Perspective article by the multi-stakeholder European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases (ERN ReCONNET). The clinical, organizational and health economic challenges faced by health-care providers, institutions, patients and their families during the SARS-CoV-2 outbreak have demonstrated the importance of ensuring continuity of care in the management of rCTDs, including adequate diagnostics and monitoring protocols, and highlighted the need for a structured emergency strategy. The vulnerability of patients with rCTDs needs to be taken into account when planning future health policies, in preparation for not only the post-COVID era, but also any possible new health emergencies.
AB - During the COVID-19 pandemic, the need to provide high-level care for a large number of patients with COVID-19 has affected resourcing for, and limited the routine care of, all other conditions. The impact of this health emergency is particularly relevant in the rare connective tissue diseases (rCTDs) communities, as discussed in this Perspective article by the multi-stakeholder European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases (ERN ReCONNET). The clinical, organizational and health economic challenges faced by health-care providers, institutions, patients and their families during the SARS-CoV-2 outbreak have demonstrated the importance of ensuring continuity of care in the management of rCTDs, including adequate diagnostics and monitoring protocols, and highlighted the need for a structured emergency strategy. The vulnerability of patients with rCTDs needs to be taken into account when planning future health policies, in preparation for not only the post-COVID era, but also any possible new health emergencies.
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U2 - 10.1038/s41584-020-00565-z
DO - 10.1038/s41584-020-00565-z
M3 - Review article
AN - SCOPUS:85099196317
JO - Nature reviews. Rheumatology
JF - Nature reviews. Rheumatology
SN - 1759-4790
ER -