The impact of the implementation of the Dutch combined Meeting Centres Support Programme for family caregivers of people with dementia in Italy, Poland and UK

Shirley Evans, Simon Evans, Dawn Brooker, Cate Henderson, Dorota Szcześniak, Teresa Atkinson, Jennifer Bray, Rehill Amritpal, Francesca Lea Saibene, Alessia d'Arma, Claudia Scorolli, Rabih Chattat, Elisabetta Farina, Katarzyna Urbańska, Joanna Rymaszewska, Franka Meiland, Rose-Marie Dröes

Research output: Contribution to journalArticle

Abstract

OBJECTIVES: The MEETINGDEM research project aimed to implement the combined Dutch Meeting Centre Support Programme (MCSP) for community-dwelling people with dementia and caregivers within Italy, Poland and UK and to assess whether comparable benefits were found in these countries as in the Netherlands.

METHOD: Nine pilot Meeting Centres (MCs) participated (Italy-5, Poland-2, UK-2). Effectiveness of MCSP was compared to usual care (UC) on caregiver outcomes measuring competence (SSCQ), mental health (GHQ-12), emotional distress (NPI-Q) and loneliness (UCLA) analysed by ANCOVAs in a 6-month pre-test/post-test controlled trial. Interviews using standardised measures were completed with caregivers.

RESULTS: Pre/post data were collected for 93 caregivers receiving MCSP and 74 receiving UC. No statistically significant differences on the outcome measures were found overall. At a country level MC caregivers in Italy showed significant better general mental health (p = 0.04, d = 0.55) and less caregiver distress (p = 0.02, d = 0.62) at post-test than the UC group. Caregiver satisfaction was rated on a sample at 3 months (n = 81) and 6 months (n = 84). The majority of caregivers reported feeling less burdened and more supported by participating in MCSP.

CONCLUSION: The moderate positive effect on sense of competence and the greater mental health benefit for lonely caregivers using the MCSP compared to UC as found in the original Dutch studies were not replicated. However, subject to study limitations, caregivers in Italy using MCSP benefitted more regarding their mental health and emotional distress than caregivers using UC. Further evaluation of the benefits of MCSP within these countries in larger study samples is recommended.

Original languageEnglish
Pages (from-to)1-11
Number of pages11
JournalAging and Mental Health
DOIs
Publication statusE-pub ahead of print - Dec 6 2018

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Poland
Italy
Caregivers
Dementia
Mental Health
Mental Competency
Independent Living
Loneliness
Insurance Benefits
Netherlands
Emotions
Outcome Assessment (Health Care)
Interviews

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The impact of the implementation of the Dutch combined Meeting Centres Support Programme for family caregivers of people with dementia in Italy, Poland and UK. / Evans, Shirley; Evans, Simon; Brooker, Dawn; Henderson, Cate; Szcześniak, Dorota; Atkinson, Teresa; Bray, Jennifer; Amritpal, Rehill; Saibene, Francesca Lea; d'Arma, Alessia; Scorolli, Claudia; Chattat, Rabih; Farina, Elisabetta; Urbańska, Katarzyna; Rymaszewska, Joanna; Meiland, Franka; Dröes, Rose-Marie.

In: Aging and Mental Health, 06.12.2018, p. 1-11.

Research output: Contribution to journalArticle

Evans, S, Evans, S, Brooker, D, Henderson, C, Szcześniak, D, Atkinson, T, Bray, J, Amritpal, R, Saibene, FL, d'Arma, A, Scorolli, C, Chattat, R, Farina, E, Urbańska, K, Rymaszewska, J, Meiland, F & Dröes, R-M 2018, 'The impact of the implementation of the Dutch combined Meeting Centres Support Programme for family caregivers of people with dementia in Italy, Poland and UK', Aging and Mental Health, pp. 1-11. https://doi.org/10.1080/13607863.2018.1544207
Evans, Shirley ; Evans, Simon ; Brooker, Dawn ; Henderson, Cate ; Szcześniak, Dorota ; Atkinson, Teresa ; Bray, Jennifer ; Amritpal, Rehill ; Saibene, Francesca Lea ; d'Arma, Alessia ; Scorolli, Claudia ; Chattat, Rabih ; Farina, Elisabetta ; Urbańska, Katarzyna ; Rymaszewska, Joanna ; Meiland, Franka ; Dröes, Rose-Marie. / The impact of the implementation of the Dutch combined Meeting Centres Support Programme for family caregivers of people with dementia in Italy, Poland and UK. In: Aging and Mental Health. 2018 ; pp. 1-11.
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abstract = "OBJECTIVES: The MEETINGDEM research project aimed to implement the combined Dutch Meeting Centre Support Programme (MCSP) for community-dwelling people with dementia and caregivers within Italy, Poland and UK and to assess whether comparable benefits were found in these countries as in the Netherlands.METHOD: Nine pilot Meeting Centres (MCs) participated (Italy-5, Poland-2, UK-2). Effectiveness of MCSP was compared to usual care (UC) on caregiver outcomes measuring competence (SSCQ), mental health (GHQ-12), emotional distress (NPI-Q) and loneliness (UCLA) analysed by ANCOVAs in a 6-month pre-test/post-test controlled trial. Interviews using standardised measures were completed with caregivers.RESULTS: Pre/post data were collected for 93 caregivers receiving MCSP and 74 receiving UC. No statistically significant differences on the outcome measures were found overall. At a country level MC caregivers in Italy showed significant better general mental health (p = 0.04, d = 0.55) and less caregiver distress (p = 0.02, d = 0.62) at post-test than the UC group. Caregiver satisfaction was rated on a sample at 3 months (n = 81) and 6 months (n = 84). The majority of caregivers reported feeling less burdened and more supported by participating in MCSP.CONCLUSION: The moderate positive effect on sense of competence and the greater mental health benefit for lonely caregivers using the MCSP compared to UC as found in the original Dutch studies were not replicated. However, subject to study limitations, caregivers in Italy using MCSP benefitted more regarding their mental health and emotional distress than caregivers using UC. Further evaluation of the benefits of MCSP within these countries in larger study samples is recommended.",
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T1 - The impact of the implementation of the Dutch combined Meeting Centres Support Programme for family caregivers of people with dementia in Italy, Poland and UK

AU - Evans, Shirley

AU - Evans, Simon

AU - Brooker, Dawn

AU - Henderson, Cate

AU - Szcześniak, Dorota

AU - Atkinson, Teresa

AU - Bray, Jennifer

AU - Amritpal, Rehill

AU - Saibene, Francesca Lea

AU - d'Arma, Alessia

AU - Scorolli, Claudia

AU - Chattat, Rabih

AU - Farina, Elisabetta

AU - Urbańska, Katarzyna

AU - Rymaszewska, Joanna

AU - Meiland, Franka

AU - Dröes, Rose-Marie

PY - 2018/12/6

Y1 - 2018/12/6

N2 - OBJECTIVES: The MEETINGDEM research project aimed to implement the combined Dutch Meeting Centre Support Programme (MCSP) for community-dwelling people with dementia and caregivers within Italy, Poland and UK and to assess whether comparable benefits were found in these countries as in the Netherlands.METHOD: Nine pilot Meeting Centres (MCs) participated (Italy-5, Poland-2, UK-2). Effectiveness of MCSP was compared to usual care (UC) on caregiver outcomes measuring competence (SSCQ), mental health (GHQ-12), emotional distress (NPI-Q) and loneliness (UCLA) analysed by ANCOVAs in a 6-month pre-test/post-test controlled trial. Interviews using standardised measures were completed with caregivers.RESULTS: Pre/post data were collected for 93 caregivers receiving MCSP and 74 receiving UC. No statistically significant differences on the outcome measures were found overall. At a country level MC caregivers in Italy showed significant better general mental health (p = 0.04, d = 0.55) and less caregiver distress (p = 0.02, d = 0.62) at post-test than the UC group. Caregiver satisfaction was rated on a sample at 3 months (n = 81) and 6 months (n = 84). The majority of caregivers reported feeling less burdened and more supported by participating in MCSP.CONCLUSION: The moderate positive effect on sense of competence and the greater mental health benefit for lonely caregivers using the MCSP compared to UC as found in the original Dutch studies were not replicated. However, subject to study limitations, caregivers in Italy using MCSP benefitted more regarding their mental health and emotional distress than caregivers using UC. Further evaluation of the benefits of MCSP within these countries in larger study samples is recommended.

AB - OBJECTIVES: The MEETINGDEM research project aimed to implement the combined Dutch Meeting Centre Support Programme (MCSP) for community-dwelling people with dementia and caregivers within Italy, Poland and UK and to assess whether comparable benefits were found in these countries as in the Netherlands.METHOD: Nine pilot Meeting Centres (MCs) participated (Italy-5, Poland-2, UK-2). Effectiveness of MCSP was compared to usual care (UC) on caregiver outcomes measuring competence (SSCQ), mental health (GHQ-12), emotional distress (NPI-Q) and loneliness (UCLA) analysed by ANCOVAs in a 6-month pre-test/post-test controlled trial. Interviews using standardised measures were completed with caregivers.RESULTS: Pre/post data were collected for 93 caregivers receiving MCSP and 74 receiving UC. No statistically significant differences on the outcome measures were found overall. At a country level MC caregivers in Italy showed significant better general mental health (p = 0.04, d = 0.55) and less caregiver distress (p = 0.02, d = 0.62) at post-test than the UC group. Caregiver satisfaction was rated on a sample at 3 months (n = 81) and 6 months (n = 84). The majority of caregivers reported feeling less burdened and more supported by participating in MCSP.CONCLUSION: The moderate positive effect on sense of competence and the greater mental health benefit for lonely caregivers using the MCSP compared to UC as found in the original Dutch studies were not replicated. However, subject to study limitations, caregivers in Italy using MCSP benefitted more regarding their mental health and emotional distress than caregivers using UC. Further evaluation of the benefits of MCSP within these countries in larger study samples is recommended.

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DO - 10.1080/13607863.2018.1544207

M3 - Article

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JO - Aging and Mental Health

JF - Aging and Mental Health

SN - 1360-7863

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