The Italian multiple sclerosis register

Italian Multiple Sclerosis Register Centers Group

Research output: Contribution to journalArticlepeer-review

Abstract

The past decade has seen extraordinary increase in worldwide availability of and access to several large multiple sclerosis (MS) databases and registries. MS registries represent powerful tools to provide meaningful information on the burden, natural history, and long-term safety and effectiveness of treatments. Moreover, patients, physicians, industry, and policy makers have an active interest in real-world observational studies based on register data, as they have the potential to answer the questions that are most relevant to daily treatment decision-making. In 2014, the Italian MS Foundation, in collaboration with the Italian MS clinical centers, promoted and funded the creation of the Italian MS Register, a project in continuity with the existing Italian MS Database Network set up from 2001. Main objective of the Italian MS Register is to create an organized multicenter structure to collect data of all MS patients for better defining the disease epidemiology, improving quality of care, and promoting research projects in high-priority areas. The aim of this article is to present the current framework and network of the Italian MS register, including the methodology used to improve the quality of data collection and to facilitate the exchange of data and the collaboration among national and international groups.

Original languageEnglish
Pages (from-to)155-165
Number of pages11
JournalNeurological Sciences
Volume40
Issue number1
DOIs
Publication statusPublished - Jan 2019

Keywords

  • Adult
  • Cohort Studies
  • Data Collection/methods
  • Databases, Factual/trends
  • Female
  • Humans
  • Italy/epidemiology
  • Longitudinal Studies
  • Male
  • Multiple Sclerosis/diagnosis
  • Registries

Fingerprint Dive into the research topics of 'The Italian multiple sclerosis register'. Together they form a unique fingerprint.

Cite this