The Italian National Centre for rare diseases: Where research and public health translate into action

Domenica Taruscio; Linda Agresta; Annalisa Amato; Giuseppe Bernardo; Luana Bernardo; Francesca Braguti; Pietro Carbone; Claudio Carta; Marina Ceccarini; Federica Censi; Simona Coppola; Patrizia Crialese; Marta De Santis; Stefano Diemoz; Carlo Donati; Sabina Gainotti; Gianluca Ferrari; Giovanna Floridia; Claudio Frank; Rosa Giuseppa Frazzica; Amalia E. Gentile; Orietta Granata; Yllka Kodra; Manuela Latrofa; Paola Laricchiuta; Armando Magrelli; Cristina Morciano; Agata Polizzi; Stefania Razeto; Marco Salvatore; Antonella Sanseverino; Daniele Savini; Paola Torreri; Fabrizio Tosto; Flavia Villani; Giorgio Vincenti; Luciano Vittozzi

doi:10.2450/2014.0040-14s

The Italian National Centre for rare diseases: Where research and public health translate into action

Domenica Taruscio, Linda Agresta, Annalisa Amato, Giuseppe Bernardo, Luana Bernardo, Francesca Braguti, Pietro Carbone, Claudio Carta, Marina Ceccarini, Federica Censi, Simona Coppola, Patrizia Crialese, Marta De Santis, Stefano Diemoz, Carlo Donati, Sabina Gainotti, Gianluca Ferrari, Giovanna Floridia, Claudio Frank, Rosa Giuseppa FrazzicaAmalia E. Gentile, Orietta Granata, Yllka Kodra, Manuela Latrofa, Paola Laricchiuta, Armando Magrelli, Cristina Morciano, Agata Polizzi, Stefania Razeto, Marco Salvatore, Antonella Sanseverino, Daniele Savini, Paola Torreri, Fabrizio Tosto, Flavia Villani, Giorgio Vincenti, Luciano Vittozzi

IRCCS SDN

Research output: Contribution to journal › Article › peer-review

Original language	English
Journal	Blood Transfusion
Volume	12
Issue number	SUPPL. 3
DOIs	https://doi.org/10.2450/2014.0040-14s
Publication status	Published - 2014

Keywords

Experimental research
Orphan drugs
Public health
Rare diseases
Registries

ASJC Scopus subject areas

Hematology
Immunology and Allergy
Medicine(all)

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10.2450/2014.0040-14s

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Taruscio, D., Agresta, L., Amato, A., Bernardo, G., Bernardo, L., Braguti, F., Carbone, P., Carta, C., Ceccarini, M., Censi, F., Coppola, S., Crialese, P., De Santis, M., Diemoz, S., Donati, C., Gainotti, S., Ferrari, G., Floridia, G., Frank, C., ... Vittozzi, L. (2014). The Italian National Centre for rare diseases: Where research and public health translate into action. Blood Transfusion, 12(SUPPL. 3). https://doi.org/10.2450/2014.0040-14s

The Italian National Centre for rare diseases : Where research and public health translate into action. / Taruscio, Domenica; Agresta, Linda; Amato, Annalisa; Bernardo, Giuseppe; Bernardo, Luana; Braguti, Francesca; Carbone, Pietro; Carta, Claudio; Ceccarini, Marina; Censi, Federica; Coppola, Simona; Crialese, Patrizia; De Santis, Marta; Diemoz, Stefano; Donati, Carlo; Gainotti, Sabina; Ferrari, Gianluca; Floridia, Giovanna; Frank, Claudio; Frazzica, Rosa Giuseppa; Gentile, Amalia E.; Granata, Orietta; Kodra, Yllka; Latrofa, Manuela; Laricchiuta, Paola; Magrelli, Armando; Morciano, Cristina; Polizzi, Agata; Razeto, Stefania; Salvatore, Marco; Sanseverino, Antonella; Savini, Daniele; Torreri, Paola; Tosto, Fabrizio; Villani, Flavia; Vincenti, Giorgio; Vittozzi, Luciano.

In: Blood Transfusion, Vol. 12, No. SUPPL. 3, 2014.

Research output: Contribution to journal › Article › peer-review

Taruscio, D, Agresta, L, Amato, A, Bernardo, G, Bernardo, L, Braguti, F, Carbone, P, Carta, C, Ceccarini, M, Censi, F, Coppola, S, Crialese, P, De Santis, M, Diemoz, S, Donati, C, Gainotti, S, Ferrari, G, Floridia, G, Frank, C, Frazzica, RG, Gentile, AE, Granata, O, Kodra, Y, Latrofa, M, Laricchiuta, P, Magrelli, A, Morciano, C, Polizzi, A, Razeto, S, Salvatore, M, Sanseverino, A, Savini, D, Torreri, P, Tosto, F, Villani, F, Vincenti, G & Vittozzi, L 2014, 'The Italian National Centre for rare diseases: Where research and public health translate into action', Blood Transfusion, vol. 12, no. SUPPL. 3. https://doi.org/10.2450/2014.0040-14s

Taruscio, Domenica ; Agresta, Linda ; Amato, Annalisa ; Bernardo, Giuseppe ; Bernardo, Luana ; Braguti, Francesca ; Carbone, Pietro ; Carta, Claudio ; Ceccarini, Marina ; Censi, Federica ; Coppola, Simona ; Crialese, Patrizia ; De Santis, Marta ; Diemoz, Stefano ; Donati, Carlo ; Gainotti, Sabina ; Ferrari, Gianluca ; Floridia, Giovanna ; Frank, Claudio ; Frazzica, Rosa Giuseppa ; Gentile, Amalia E. ; Granata, Orietta ; Kodra, Yllka ; Latrofa, Manuela ; Laricchiuta, Paola ; Magrelli, Armando ; Morciano, Cristina ; Polizzi, Agata ; Razeto, Stefania ; Salvatore, Marco ; Sanseverino, Antonella ; Savini, Daniele ; Torreri, Paola ; Tosto, Fabrizio ; Villani, Flavia ; Vincenti, Giorgio ; Vittozzi, Luciano. / The Italian National Centre for rare diseases : Where research and public health translate into action. In: Blood Transfusion. 2014 ; Vol. 12, No. SUPPL. 3.

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The Italian National Centre for rare diseases: Where research and public health translate into action

Keywords

ASJC Scopus subject areas

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