TY - JOUR
T1 - The Italian version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
AU - For the Paediatric Rheumatology International Trials Organisation (PRINTO)
AU - Consolaro, Alessandro
AU - Bovis, Francesca
AU - Pistorio, Angela
AU - Cimaz, Rolando
AU - De Benedetti, Fabrizio
AU - Miniaci, Angela
AU - Corona, Fabrizia
AU - Gerloni, Valeria
AU - Martino, Silvana
AU - Pastore, Serena
AU - Barone, Patrizia
AU - Pieropan, Sara
AU - Cortis, Elisabetta
AU - Podda, Rosa Anna
AU - Gallizzi, Romina
AU - Civino, Adele
AU - Torre, Francesco La
AU - Rigante, Donato
AU - Consolini, Rita
AU - Maggio, Maria Cristina
AU - Magni-Manzoni, Silvia
AU - Perfetti, Francesca
AU - Filocamo, Giovanni
AU - Toppino, Claudia
AU - Licciardi, Francesco
AU - Garrone, Marco
AU - Scala, Silvia
AU - Patrone, Elisa
AU - Tonelli, Monica
AU - Tani, Daniela
AU - Ravelli, Angelo
AU - Martini, Alberto
AU - Ruperto, Nicolino
PY - 2018/4/1
Y1 - 2018/4/1
N2 - The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Italian language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the 3 Likert assumptions, floor/ceiling effects, internal consistency, Cronbach’s alpha, interscale correlations, test–retest reliability, and construct validity (convergent and discriminant validity). A total of 1296 JIA patients (7.2% systemic, 59.5% oligoarticular, 21.4% RF negative polyarthritis, 11.9% other categories) and 100 healthy children, were enrolled in 18 centres. The JAMAR components discriminated well healthy subjects from JIA patients except for the Health Related Quality of Life (HRQoL) Psychosocial Health (PsH) subscales. All JAMAR components revealed good psychometric performances. In conclusion, the Italian version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.
AB - The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Italian language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the 3 Likert assumptions, floor/ceiling effects, internal consistency, Cronbach’s alpha, interscale correlations, test–retest reliability, and construct validity (convergent and discriminant validity). A total of 1296 JIA patients (7.2% systemic, 59.5% oligoarticular, 21.4% RF negative polyarthritis, 11.9% other categories) and 100 healthy children, were enrolled in 18 centres. The JAMAR components discriminated well healthy subjects from JIA patients except for the Health Related Quality of Life (HRQoL) Psychosocial Health (PsH) subscales. All JAMAR components revealed good psychometric performances. In conclusion, the Italian version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.
KW - Disease status
KW - Functional ability
KW - Health Related Quality of Life
KW - JAMAR
KW - Juvenile idiopathic arthritis
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U2 - 10.1007/s00296-018-3960-1
DO - 10.1007/s00296-018-3960-1
M3 - Article
AN - SCOPUS:85045261778
VL - 38
SP - 251
EP - 258
JO - Rheumatology International
JF - Rheumatology International
SN - 0172-8172
ER -