Il progetto pilota di Registro Italiano delle Neurofibromatosi

Translated title of the contribution: The pilot project of the Italian Neurofibromatosis Register

P. Balestrazzi, M. E. Lorenzetti, M. Sigorini, G. Lama, G. Avino, L. N. Rossi, C. Zanolini, T. Perniola, L. Margari, F. Panizon, M. Rabusin, L. Pavone, M. Ruggieri, R. Micheli, F. Gitti, E. Cacciari, R. Bergamaschi, B. Boscherini, C. Galasso, E. FranzoniM. R. Migliore, A. Giannotti, M. C. Digilio, E. Bonioli, C. Bellini, C. Manini, S. Savasta, O. Gabrielli, C. Pellegrini, G. Iwaneiko, G. Gennari, G. Lanzi, C. A. Zambrino, G. Banchini, L. Garavelli, P. Strisciuglio, C. Romano, L. Zelante, A. Pasquinelli, A. Da Pelo, G. C. Biasini, G. P. Casadei, L. Comellini, A. Tozzola, F. Bassanetti, G. Busti, P. Scorza, C. Ciatto, C. Vullo, P. Banin, M. Loi

Research output: Contribution to journalArticle

Abstract

The Authors present the aims, organization and the first results of the Pilot Project of the Italian Neurofibromatosis Register. The initiative, promoted in Autumn 1995 by the NF Italian Study Group, has now a participation of 27 Centers that, in only 9 months, have produced information on 548 NFI patients, 13 NF2 and 5 NF5. The Register uses the National NF Foundation International DataBase, (U.S.A.). We compare this collecting data experience at the national level to earlier initiatives and we present its advantages. In conclusion, the Register is becoming the best instrument to spread the collaboration in the scientific and take-care fields among all those who are interested in NF in Italy and in other Countries.

Original languageItalian
Pages (from-to)111-117
Number of pages7
JournalRivista Italiana di Pediatria
Volume23
Issue number1
Publication statusPublished - Feb 1997

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ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health

Cite this

Balestrazzi, P., Lorenzetti, M. E., Sigorini, M., Lama, G., Avino, G., Rossi, L. N., Zanolini, C., Perniola, T., Margari, L., Panizon, F., Rabusin, M., Pavone, L., Ruggieri, M., Micheli, R., Gitti, F., Cacciari, E., Bergamaschi, R., Boscherini, B., Galasso, C., ... Loi, M. (1997). Il progetto pilota di Registro Italiano delle Neurofibromatosi. Rivista Italiana di Pediatria, 23(1), 111-117.