The quality of life of children and adolescents with X-linked agammaglobulinemia

Annarosa Soresina, Renata Nacinovich, Monica Bomba, Morena Cassani, Anna Molinaro, Antonella Sciotto, Silvana Martino, Fabio Cardinale, Domenico De Mattia, Caterina Putti, Rosa Maria Dellepiane, Leonardo Felici, Giovanni Parrinello, Francesca Neri, Alessandro Plebani, P. Pierani, D. DeMattia, B. Martire, L. Armenio, F. CardinaleF. Dammacco, G. Ranieri, M. Masi, A. Miniaci, A. Pession, R. Rondelli, A. Plebani, L. D. Notarangelo, A. Soresina, [No Value] Cao, F. Cossu, S. Del Giacco, P. Manconi, I. Evangelista, S. Magro, S. Morgione, P. Strisciuglio, E. Anastasio, G. Schillirò, A. Sciotto, R. Paganelli, M. Sticca, D. Sperlì, L. Carpino, G. Bernini, C. Azzari, E. Maggi, S. Romagnani, A. Matucci, A. Vultaggio, E. Castagnola, M. Gattorno, G. Presta, A. Civino, G. Gambaretto, S. Fasoli, C. Salpietro, M. C. Pietrogrande, R. M. DellePiane, C. Panisi, G. Cambiaghi, M. Pietrogrande, M. G. Roncarolo, A. Aiuti, G. Masera, A. Biondi, A. Sala, C. Pignata, V. Poggi, G. Menna, R. Di Nardo, A. D'Apuzzo, A. Pelliccia, A. Correra, G. Marone, G. Spadaro, M. Carli, L. Zanesco, G. Basso, M. C. Putti, G. Semenzato, C. Agostini, G. M. Amato, M. Aricò, A. Trizzino, G. Izzi, P. Bertolini, F. Locatelli, M. Zecca, G. Rondini, G. L. Marseglia, R. Maccario, G. Bossi, L. Felici, C. Favre, R. Consolini, V. Vecchi, P. Sacchini, G. Rinaldi, A. G. Ugazio, P. Rossi, S. Livadiotti, C. Cancrini, A. Finocchi, A. Stabile, M. Duse, M. Iacobini, I. Quinti, V. Moschese, F. Cecere, G. Morgese, A. Acquaviva, G. De Zan, S. Strafella, P. Tamaro, M. Rabusin, P. A. Tovo, S. Martino, L. Nespoli, M. Marinoni, A. Porcellini, G. A. Cazzola

Research output: Contribution to journalArticlepeer-review

Abstract

Introduction: The health-related quality of life in X-linked agammaglobulinemia was investigated in 25 children and adolescents patients through the Italian version of Pediatric Quality of Life Inventory 4.0 Generic Core Scale for patients aged less then 18 years, comparing child perception to that of the parents and the physician's evaluation. The data were compared with the ones of 80 healthy controls and the literature data of a group of patients with rheumatic diseases. Discussion: The agammaglobulinemia subjects perceived a lower global quality of life than the healthy subjects, but significantly higher than the rheumatic diseases controls. The clinical relevance of health-related quality of life assessment in X-linked agammaglobulinemia pediatric patients is discussed.

Original languageEnglish
Pages (from-to)501-507
Number of pages7
JournalJournal of Clinical Immunology
Volume29
Issue number4
DOIs
Publication statusPublished - Jul 2009

Keywords

  • children
  • health-related quality of life
  • parents
  • PedsQL 4.0 Generic Core Scale
  • X-linked agammaglobulinemia

ASJC Scopus subject areas

  • Immunology and Allergy
  • Immunology

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