The second Team Haemophilia Education Meeting, 2016, Frankfurt, Germany

Erik Berntorp, Yesim Dargaud, Daniel Hart, Sébastien Lobet, Maria Elisa Mancuso, Roseline d'Oiron, David Perry, Debra Pollard, Marijke van den Berg, Jan Blatný, Hervé Chambost, Andrea S. Doria, Pål André Holme, Radoslaw Kaczmarek, Lorenzo Mantovani, Paul McLaughlin, Lochana Nanayakkara, Pia Petrini, Thomas Sannié, Edward Laane & 6 others Raquel Maia, Athina Dettoraki, Anna Farrell, Susan Halimeh, Sayma Raza, Stephanie Taylor

Research output: Contribution to journalArticle

Abstract

The first Team Haemophilia Education (THE) Meeting was held on 7–8 May 2015 in Amsterdam, The Netherlands. It aimed to promote the optimal care of patients with haemophilia through education of the multidisciplinary treatment team. This was achieved by reviewing the latest developments in haemophilia management, considering how these can be implemented in the clinic to improve patient care and providing a platform for networking and debate for all haemophilia treatment team members. The second THE Meeting was held on 19–20 May in Frankfurt, Germany, and participants included doctors, nurses, physiotherapists, patient representatives and data management staff from 20 different countries. Topics covered the role of the multidisciplinary team in delivering the best haemophilia care, challenges in the management of haemophilia across Europe, available clotting factor treatments, future treatments and the use of genetics in advising carriers of haemophilia. This report is a summary of the key developments in haemophilia care presented by various investigators and healthcare professionals at THE Meeting 2016.

Original languageEnglish
Pages (from-to)1-15
Number of pages15
JournalEuropean Journal of Haematology
Volume98
DOIs
Publication statusPublished - Jan 1 2017

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Hemophilia A
Germany
Education
Patient Care
Patient Advocacy
Blood Coagulation Factors
Physical Therapists
Therapeutics
Netherlands
Nurses
Research Personnel
Delivery of Health Care

Keywords

  • clotting factor concentrates
  • genetics
  • haemophilia
  • laboratory assays
  • multidisciplinary
  • real-life data

ASJC Scopus subject areas

  • Hematology

Cite this

The second Team Haemophilia Education Meeting, 2016, Frankfurt, Germany. / Berntorp, Erik; Dargaud, Yesim; Hart, Daniel; Lobet, Sébastien; Mancuso, Maria Elisa; d'Oiron, Roseline; Perry, David; Pollard, Debra; van den Berg, Marijke; Blatný, Jan; Chambost, Hervé; Doria, Andrea S.; Holme, Pål André; Kaczmarek, Radoslaw; Mantovani, Lorenzo; McLaughlin, Paul; Nanayakkara, Lochana; Petrini, Pia; Sannié, Thomas; Laane, Edward; Maia, Raquel; Dettoraki, Athina; Farrell, Anna; Halimeh, Susan; Raza, Sayma; Taylor, Stephanie.

In: European Journal of Haematology, Vol. 98, 01.01.2017, p. 1-15.

Research output: Contribution to journalArticle

Berntorp, E, Dargaud, Y, Hart, D, Lobet, S, Mancuso, ME, d'Oiron, R, Perry, D, Pollard, D, van den Berg, M, Blatný, J, Chambost, H, Doria, AS, Holme, PA, Kaczmarek, R, Mantovani, L, McLaughlin, P, Nanayakkara, L, Petrini, P, Sannié, T, Laane, E, Maia, R, Dettoraki, A, Farrell, A, Halimeh, S, Raza, S & Taylor, S 2017, 'The second Team Haemophilia Education Meeting, 2016, Frankfurt, Germany', European Journal of Haematology, vol. 98, pp. 1-15. https://doi.org/10.1111/ejh.12828
Berntorp, Erik ; Dargaud, Yesim ; Hart, Daniel ; Lobet, Sébastien ; Mancuso, Maria Elisa ; d'Oiron, Roseline ; Perry, David ; Pollard, Debra ; van den Berg, Marijke ; Blatný, Jan ; Chambost, Hervé ; Doria, Andrea S. ; Holme, Pål André ; Kaczmarek, Radoslaw ; Mantovani, Lorenzo ; McLaughlin, Paul ; Nanayakkara, Lochana ; Petrini, Pia ; Sannié, Thomas ; Laane, Edward ; Maia, Raquel ; Dettoraki, Athina ; Farrell, Anna ; Halimeh, Susan ; Raza, Sayma ; Taylor, Stephanie. / The second Team Haemophilia Education Meeting, 2016, Frankfurt, Germany. In: European Journal of Haematology. 2017 ; Vol. 98. pp. 1-15.
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