The Ukrainian version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)

Paediatric Rheumatology International Trials Organisation (PRINTO)

Research output: Contribution to journalArticle

Abstract

The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Ukrainian language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability, and construct validity (convergent and discriminant validity). A total of 100 JIA patients (2% systemic, 44% oligoarticular, 20% RF-negative polyarthritis, 34% other categories) and 100 healthy children were enrolled at the paediatric rheumatology centre of the Western Ukrainian Specialised Children's Medical Centre. The JAMAR components discriminated well between healthy subjects and JIA patients. Notably, there was no significant difference between healthy subjects and their affected peers in the school-related problems variable. All JAMAR components revealed good psychometric performances. In conclusion, the Ukrainian version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.

Original languageEnglish
Pages (from-to)403-409
Number of pages7
JournalRheumatology International
Volume38
Issue numberSuppl 1
DOIs
Publication statusPublished - Apr 2018

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Juvenile Arthritis
Psychometrics
Reproducibility of Results
Healthy Volunteers
Parents
Rheumatology
Arthritis
Reading

Keywords

  • Adolescent
  • Age of Onset
  • Arthritis, Juvenile/diagnosis
  • Case-Control Studies
  • Child
  • Child, Preschool
  • Cultural Characteristics
  • Disability Evaluation
  • Female
  • Health Status
  • Humans
  • Male
  • Parents/psychology
  • Patient Reported Outcome Measures
  • Patients/psychology
  • Predictive Value of Tests
  • Prognosis
  • Psychometrics
  • Quality of Life
  • Reproducibility of Results
  • Rheumatology/methods
  • Translating
  • Ukraine

Cite this

The Ukrainian version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR). / Paediatric Rheumatology International Trials Organisation (PRINTO).

In: Rheumatology International, Vol. 38, No. Suppl 1, 04.2018, p. 403-409.

Research output: Contribution to journalArticle

Paediatric Rheumatology International Trials Organisation (PRINTO) 2018, 'The Ukrainian version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)', Rheumatology International, vol. 38, no. Suppl 1, pp. 403-409. https://doi.org/10.1007/s00296-018-3983-7
Paediatric Rheumatology International Trials Organisation (PRINTO). / The Ukrainian version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR). In: Rheumatology International. 2018 ; Vol. 38, No. Suppl 1. pp. 403-409.
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abstract = "The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Ukrainian language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability, and construct validity (convergent and discriminant validity). A total of 100 JIA patients (2{\%} systemic, 44{\%} oligoarticular, 20{\%} RF-negative polyarthritis, 34{\%} other categories) and 100 healthy children were enrolled at the paediatric rheumatology centre of the Western Ukrainian Specialised Children's Medical Centre. The JAMAR components discriminated well between healthy subjects and JIA patients. Notably, there was no significant difference between healthy subjects and their affected peers in the school-related problems variable. All JAMAR components revealed good psychometric performances. In conclusion, the Ukrainian version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.",
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AB - The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Ukrainian language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability, and construct validity (convergent and discriminant validity). A total of 100 JIA patients (2% systemic, 44% oligoarticular, 20% RF-negative polyarthritis, 34% other categories) and 100 healthy children were enrolled at the paediatric rheumatology centre of the Western Ukrainian Specialised Children's Medical Centre. The JAMAR components discriminated well between healthy subjects and JIA patients. Notably, there was no significant difference between healthy subjects and their affected peers in the school-related problems variable. All JAMAR components revealed good psychometric performances. In conclusion, the Ukrainian version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.

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KW - Male

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KW - Patient Reported Outcome Measures

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