Transition of care in patients with anorectal malformations: Consensus by the ARM-net consortium

Stefano Giuliani, Caterina Grano, Dalia Aminoff, Nicole Schwarzer, Mariette Van De Vorle, Celia Cretolle, Michel Haanen, Giulia Brisighelli, Stefanie Marzheuser, Martin Connor

Research output: Contribution to journalArticlepeer-review


Objectives: To develop the first consensus to standardize the management of patients with Anorectal Malformations (ARMs) transitioning from childhood to adulthood. Methods: A dedicated task force of experts performed an extensive literature review and multiple meetings to define the most important aspects of transition of care. The findings were discussed with all ARM-net consortium members and a set of practical recommendations agreed upon at the annual meeting in 2016. Result: We defined seven domains that are essential to provide an effective and practical transition process. Within each domain we have developed a set of key recommendations that are important to be considered for ARM patients entering the age of transition. Conclusions: It is crucial that transition begins at an early age with regular and well-structured follow-up. Cooperation with a selected multidisciplinary team of pediatric and adult practitioners is required to prepare patients and families for effective transition to adult care and to reduce long term morbidity. Type of study: Review/Consensus paper. Level of evidence: III.

Original languageEnglish
Pages (from-to)1866-1872
JournalJournal of Pediatric Surgery
Issue number11
Publication statusPublished - 2017


  • Adult
  • Anorectal malformation
  • Follow-up
  • Imperforate anus
  • Long-term
  • Transition

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Surgery


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