Transitional care of young people with juvenile idiopathic arthritis in Italy: results of a Delphi consensus survey

Italian Paediatric Rheumatology Study Group and the Italian Society of Rheumatology

Research output: Contribution to journalArticle

Abstract

OBJECTIVES: To present the results of a Delphi consensus survey among Italian paediatric and adult rheumatologists on transitional care (TC) of young people (YP) with juvenile idiopathic arthritis (JIA).

METHODS: A taskforce of 27 paediatric and adult rheumatologists evaluated the applicability of the 2016 EULAR/PReS recommendations for TC to the Italian rheumatology practice and healthcare system and formulated additional country-specific statements aimed to increase their suitability. After a two-round discussion, applicability of EULAR/PReS recommendations and agreement with newly-proposed statements were voted on a 0-10 scale (where 0 = no applicability/agreement and 10 = total applicability/agreement). A mean level of agreement ≥8 was deemed acceptable.

RESULTS: The consensus threshold was reached for only 4 of the 12 EULAR/PReS recommendations and for 25 of the 27 country-specific statements. Poor agreement with EULAR/PReS recommendations was mostly explained by paucity of centres in Italy that possess both paediatric and adult rheumatologists, disagreement about optimal time of transition start and de nition of transition coordinator, diversity between paediatric and adult clinimetric assessments, and lack of administrative and financial support.

CONCLUSIONS: This consensus initiative represents an important step forward toward the establishment of a nationwide TC network for YP with JIA in Italy. The main goals established for the future are the identification of adult rheumatology centres that are willing to participate in the TC process, the education of adult rheumatology teams on childhood-onset rheumatic diseases and transition issues, and the increased awareness of public healthcare authorities and other stakeholders about the importance of good-quality TC.

Original languageEnglish
JournalClinical and Experimental Rheumatology
Publication statusE-pub ahead of print - Jul 25 2019

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Juvenile Arthritis
Italy
Rheumatology
Pediatrics
Delivery of Health Care
Financial Support
Quality of Health Care
Rheumatic Diseases
Transitional Care
Surveys and Questionnaires
Education
Rheumatologists

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Transitional care of young people with juvenile idiopathic arthritis in Italy : results of a Delphi consensus survey. / Italian Paediatric Rheumatology Study Group and the Italian Society of Rheumatology.

In: Clinical and Experimental Rheumatology, 25.07.2019.

Research output: Contribution to journalArticle

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title = "Transitional care of young people with juvenile idiopathic arthritis in Italy: results of a Delphi consensus survey",
abstract = "OBJECTIVES: To present the results of a Delphi consensus survey among Italian paediatric and adult rheumatologists on transitional care (TC) of young people (YP) with juvenile idiopathic arthritis (JIA).METHODS: A taskforce of 27 paediatric and adult rheumatologists evaluated the applicability of the 2016 EULAR/PReS recommendations for TC to the Italian rheumatology practice and healthcare system and formulated additional country-specific statements aimed to increase their suitability. After a two-round discussion, applicability of EULAR/PReS recommendations and agreement with newly-proposed statements were voted on a 0-10 scale (where 0 = no applicability/agreement and 10 = total applicability/agreement). A mean level of agreement ≥8 was deemed acceptable.RESULTS: The consensus threshold was reached for only 4 of the 12 EULAR/PReS recommendations and for 25 of the 27 country-specific statements. Poor agreement with EULAR/PReS recommendations was mostly explained by paucity of centres in Italy that possess both paediatric and adult rheumatologists, disagreement about optimal time of transition start and de nition of transition coordinator, diversity between paediatric and adult clinimetric assessments, and lack of administrative and financial support.CONCLUSIONS: This consensus initiative represents an important step forward toward the establishment of a nationwide TC network for YP with JIA in Italy. The main goals established for the future are the identification of adult rheumatology centres that are willing to participate in the TC process, the education of adult rheumatology teams on childhood-onset rheumatic diseases and transition issues, and the increased awareness of public healthcare authorities and other stakeholders about the importance of good-quality TC.",
author = "{Italian Paediatric Rheumatology Study Group and the Italian Society of Rheumatology} and Angelo Ravelli and Luigi Sinigaglia and Rolando Cimaz and Maria Alessio and Luciana Breda and Marco Cattalini and Alessandro Consolaro and Fabrizio Conti and Elisabetta Cortis and Salvatore D'Angelo and {De Benedetti}, Fabrizio and Andrea Doria and Claudia Ferrari and Romina Gallizzi and Marcello Govoni and Elisa Gremese and Florenzo Iannone and {La Torre}, Francesco and Maggio, {Maria Cristina} and Roberto Perricone and Irene Pontikaki and Fulvia Rossi and Fausto Salaffi and Gabriele Simonini and Roberto Caporali",
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journal = "Clinical and Experimental Rheumatology",
issn = "0392-856X",
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TY - JOUR

T1 - Transitional care of young people with juvenile idiopathic arthritis in Italy

T2 - results of a Delphi consensus survey

AU - Italian Paediatric Rheumatology Study Group and the Italian Society of Rheumatology

AU - Ravelli, Angelo

AU - Sinigaglia, Luigi

AU - Cimaz, Rolando

AU - Alessio, Maria

AU - Breda, Luciana

AU - Cattalini, Marco

AU - Consolaro, Alessandro

AU - Conti, Fabrizio

AU - Cortis, Elisabetta

AU - D'Angelo, Salvatore

AU - De Benedetti, Fabrizio

AU - Doria, Andrea

AU - Ferrari, Claudia

AU - Gallizzi, Romina

AU - Govoni, Marcello

AU - Gremese, Elisa

AU - Iannone, Florenzo

AU - La Torre, Francesco

AU - Maggio, Maria Cristina

AU - Perricone, Roberto

AU - Pontikaki, Irene

AU - Rossi, Fulvia

AU - Salaffi, Fausto

AU - Simonini, Gabriele

AU - Caporali, Roberto

PY - 2019/7/25

Y1 - 2019/7/25

N2 - OBJECTIVES: To present the results of a Delphi consensus survey among Italian paediatric and adult rheumatologists on transitional care (TC) of young people (YP) with juvenile idiopathic arthritis (JIA).METHODS: A taskforce of 27 paediatric and adult rheumatologists evaluated the applicability of the 2016 EULAR/PReS recommendations for TC to the Italian rheumatology practice and healthcare system and formulated additional country-specific statements aimed to increase their suitability. After a two-round discussion, applicability of EULAR/PReS recommendations and agreement with newly-proposed statements were voted on a 0-10 scale (where 0 = no applicability/agreement and 10 = total applicability/agreement). A mean level of agreement ≥8 was deemed acceptable.RESULTS: The consensus threshold was reached for only 4 of the 12 EULAR/PReS recommendations and for 25 of the 27 country-specific statements. Poor agreement with EULAR/PReS recommendations was mostly explained by paucity of centres in Italy that possess both paediatric and adult rheumatologists, disagreement about optimal time of transition start and de nition of transition coordinator, diversity between paediatric and adult clinimetric assessments, and lack of administrative and financial support.CONCLUSIONS: This consensus initiative represents an important step forward toward the establishment of a nationwide TC network for YP with JIA in Italy. The main goals established for the future are the identification of adult rheumatology centres that are willing to participate in the TC process, the education of adult rheumatology teams on childhood-onset rheumatic diseases and transition issues, and the increased awareness of public healthcare authorities and other stakeholders about the importance of good-quality TC.

AB - OBJECTIVES: To present the results of a Delphi consensus survey among Italian paediatric and adult rheumatologists on transitional care (TC) of young people (YP) with juvenile idiopathic arthritis (JIA).METHODS: A taskforce of 27 paediatric and adult rheumatologists evaluated the applicability of the 2016 EULAR/PReS recommendations for TC to the Italian rheumatology practice and healthcare system and formulated additional country-specific statements aimed to increase their suitability. After a two-round discussion, applicability of EULAR/PReS recommendations and agreement with newly-proposed statements were voted on a 0-10 scale (where 0 = no applicability/agreement and 10 = total applicability/agreement). A mean level of agreement ≥8 was deemed acceptable.RESULTS: The consensus threshold was reached for only 4 of the 12 EULAR/PReS recommendations and for 25 of the 27 country-specific statements. Poor agreement with EULAR/PReS recommendations was mostly explained by paucity of centres in Italy that possess both paediatric and adult rheumatologists, disagreement about optimal time of transition start and de nition of transition coordinator, diversity between paediatric and adult clinimetric assessments, and lack of administrative and financial support.CONCLUSIONS: This consensus initiative represents an important step forward toward the establishment of a nationwide TC network for YP with JIA in Italy. The main goals established for the future are the identification of adult rheumatology centres that are willing to participate in the TC process, the education of adult rheumatology teams on childhood-onset rheumatic diseases and transition issues, and the increased awareness of public healthcare authorities and other stakeholders about the importance of good-quality TC.

M3 - Article

C2 - 31376254

JO - Clinical and Experimental Rheumatology

JF - Clinical and Experimental Rheumatology

SN - 0392-856X

ER -