Trusted consent and research biobanks: Towards a 'new alliance' between researchers and donors

Research output: Contribution to journalArticle

Abstract

We argue that, in the case of research biobanks, there is a need to replace the currently used informed consent with trusted consent. Accordingly, we introduce a proposal for the structure of the latter. Further, we discuss some of the issues that can be addressed effectively through our proposal. In particular, we illustrate: i) which research should be authorized by donors; ii) how to regulate access to information; iii) the fundamental role played by a Third Party Authority in assuring compliance with the reciprocal expectations and obligations of donors and scientists. Finally, we briefly analyse two issues that might represent important elements of a 'new alliance' between researchers and donors to which the trusted consent could pave the way: i) the correlations between needs and rights of the two parties, and ii) possible economic transactions.

Original languageEnglish
Pages (from-to)93-100
Number of pages8
JournalBioethics
Volume26
Issue number2
DOIs
Publication statusPublished - Feb 2012

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Keywords

  • Biobank
  • Consent
  • New alliance
  • Trust

ASJC Scopus subject areas

  • Health Policy
  • Health(social science)
  • Philosophy

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