UceWeb: A web-based collaborative tool for collecting and sharing quality of life data

Enea Parimbelli, L. Sacchi, S. Rubrichi, A. Mazzanti, S. Quaglini

Research output: Contribution to journalArticle

5 Citations (Scopus)

Abstract

Objectives: This work aims at building a platform where quality-of-life data, namely utility coefficients, can be elicited not only for immediate use, but also systematically stored together with patient profiles to build a public repository to be further exploited in studies on specific target populations (e.g. cost/utility analyses). Methods: We capitalized on utility theory and previous experience to define a set of desirable features such a tool should show to facilitate sound elicitation of quality of life. A set of visualization tools and algorithms has been developed to this purpose. To make it easily accessible for potential users, the software has been designed as a web application. A pilot validation study has been performed on 20 atrial fibrillation patients. Results: A collaborative platform, UceWeb, has been developed and tested. It implements the standard gamble, time trade-off and rating-scale utility elicitation methods. It allows doctors and patients to choose the mode of interaction to maximize patients' comfort in answering difficult questions. Every utility elicitation may contribute to the growth of the repository. Conclusion: UceWeb can become a unique source of data allowing researchers both to perform more reliable comparisons among healthcare interventions and build statistical models to gain deeper insight into quality of life data.

Original languageEnglish
Pages (from-to)156-163
Number of pages8
JournalMethods of Information in Medicine
Volume54
Issue number2
DOIs
Publication statusPublished - 2015

Fingerprint

Quality of Life
Validation Studies
Health Services Needs and Demand
Information Storage and Retrieval
Statistical Models
Atrial Fibrillation
Cost-Benefit Analysis
Software
Economics
Research Personnel
Delivery of Health Care
Growth
Patient Comfort

Keywords

  • Collaborative platform
  • Quality of life
  • Repository
  • Utility elicitation
  • Web-application

ASJC Scopus subject areas

  • Health Informatics
  • Health Information Management
  • Advanced and Specialised Nursing

Cite this

UceWeb : A web-based collaborative tool for collecting and sharing quality of life data. / Parimbelli, Enea; Sacchi, L.; Rubrichi, S.; Mazzanti, A.; Quaglini, S.

In: Methods of Information in Medicine, Vol. 54, No. 2, 2015, p. 156-163.

Research output: Contribution to journalArticle

Parimbelli, Enea ; Sacchi, L. ; Rubrichi, S. ; Mazzanti, A. ; Quaglini, S. / UceWeb : A web-based collaborative tool for collecting and sharing quality of life data. In: Methods of Information in Medicine. 2015 ; Vol. 54, No. 2. pp. 156-163.
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