Use of Rasch analysis to refine a patient-reported questionnaire on satisfaction with communication of the multiple sclerosis diagnosis

A. Solari, M. Grzeda, A. Giordano, K. Mattarozzi, R. D'Alessandro, A. Simone, L. Tesio

Research output: Contribution to journalArticle

Abstract

Background: The Comunicazione medico-paziente nella Sclerosi Multipla Revised (COSM-R) is a patient self-assessed questionnaire probing the moment of multiple sclerosis (MS) diagnosis disclosure (section 1, five items) and following period (section 2, 15 items). Objectives: This study examined COSM-R dimensionality and measurement properties through Rasch analysis (partialcredit model) and proposed a revised questionnaire. Methods: Cross-sectional COSM-R data were obtained from 1068 people with MS (PwMS, 1065 questionnaires) articipating in four studies (102 centres). Mean age was 40 years (range 1773); 70% were women; 53% were from orthern, 25% from Central, and 21% from Southern Italy. esults: Unidimensionality was not confirmed for COSM-R section 1, but was for section 2 after removal of three tems. The revised instrument (COSM-S, Shortened) consisted of the original five-item checklist (section 1), modified by emoving the table grouping of three items, and 12 of the original 15 section 2 items, which could now be summed and ransformed into an interval scale. Scores were higher for items assessing emotional satisfaction than for those assessing nformational satisfaction. onclusions: The proposed COSM-S is a composite measure of satisfaction with MS diagnosis communication withimproved metric properties over the original COSM-R, and whose section 2 satisfies Rasch moel expectations.

Original languageEnglish
Pages (from-to)1224-1233
Number of pages10
JournalMultiple Sclerosis Journal
Volume20
Issue number9
DOIs
Publication statusPublished - 2014

Keywords

  • diagnosis communication
  • Multiple sclerosis
  • patient satisfaction
  • Rasch analysis
  • validation studies

ASJC Scopus subject areas

  • Clinical Neurology
  • Neurology

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